Explanipedia

<i>“I’ve always felt in the middle of hearing people and the deaf community.”</i> What is it like to grow up with hearing loss? Open

Sian K. Smith, Helen Pryce, Georgina Burns O’Connell, Saira Hussain, Amanda Hall , et al. · 2025

This study highlights the lasting impacts of growing up with hearing loss on communication, social relationships, emotional well-being, and education.

The lived experience of hearing loss: a systematic review with narrative synthesis Open

Helen Pryce, Georgina Burns-O’Connell, Sian K. Smith, Rachel Shaw · 2025

This systematic review and narrative synthesis provides a comprehensive description of the literature on the lived experience of hearing loss. Even with hearing care, the challenges of living with hearing loss persist. A deeper understandi…

Refinement and Validation of a New Patient‐Reported Experience Measure for Hearing Loss (My Hearing PREM) Open

Sian K. Smith, Helen Pryce, Georgina Burns O’Connell, Rebecca Knibb, Rosemary Greenwood · 2025

Context Patient‐reported experience measures (PREMs) generate insights into daily challenges experienced when living with a chronic condition and experiences of care. There are no validated PREMs to measure the experience of hearing loss. …

Development of the First Patient‐Reported Experience Measure (PREM) for Hearing Loss in Audiology Care—My Hearing PREM Open

Sian K. Smith, Georgina Burns-O’Connell, Rebecca Knibb, Rosemary Greenwood, Saira Hussain , et al. · 2024

Context Patient‐reported experience measures (PREMs) provide important insights into the challenges experienced when living with a chronic condition. Although patient‐reported outcome measures (PROMs) exist in audiology, there are no valid…

The lived experience of hearing loss – an individualised responsibility Open

Helen Pryce, Sian K. Smith, Georgie Burns O’Connell, Saira Hussain, Jean Straus , et al. · 2024

This work provides new insights for those practising audiology and highlights the importance of building social support systems through implementation of family and peer support approaches.

‘The burden is very much on yourself’: A qualitative study to understand the illness and treatment burden of hearing loss across the life course Open

Sian K. Smith, Helen Pryce, Georgina Burns O’Connell, Saira Hussain, Rachel Shaw , et al. · 2024

Introduction Hearing loss is a chronic health condition that rises sharply with age. The way people respond to and cope with health conditions is influenced by their capacity to perform illness and treatment‐related work. The aim was to ex…

Cognitive and Cerebrospinal Fluid Alzheimer’s Disease–related Biomarker Trajectories in Older Surgical Patients and Matched Nonsurgical Controls Open

Melody Reese, Megan K. Wong, V Wang Cm Seah Wl Chow Sh Lim Ck Cheong, Christine I. Ha, Mary Cooter , et al. · 2024

Background Anesthesia and/or surgery accelerate Alzheimer’s disease pathology and cause memory deficits in animal models, yet there is a lack of prospective data comparing cerebrospinal fluid (CSF) Alzheimer’s disease–related biomarker and…

Barriers and drivers of positive COVID-19 vaccination behaviours among healthcare workers in Europe and Central Asia: a qualitative cross-country synthesis Open

Cath Jackson, Sian K. Smith, Anastas Aghasaryan, Diana Andreasyan, Aron Kassahun Aregay , et al. · 2023

Vaccination uptake is essential to controlling the ongoing COVID-19 pandemic. Healthcare workers (HCWs) play a critical role in receiving, recommending and delivering COVID-19 vaccination. Understanding the specific influences on each beha…

What is the effect of a low literacy talking book on patient knowledge, anxiety and communication before radiation therapy starts? A pilot study Open

Sian K. Smith, Natalie Stefanic, Joanne Shaw, Heather L. Shepherd, Diana Naehrig , et al. · 2022

Introduction Radiation therapy is a common cancer treatment, requiring timely information to help patients prepare for treatment. We pilot tested a low literacy, psycho‐educational talking book (written booklet, with accompanying audio rec…

‘You’re kind of left to your own devices’: a qualitative focus group study of patients with breast, prostate or blood cancer at a hospital in the South West of England, exploring their engagement with exercise and physical activity during cancer treatment and in the months following standard care Open

Sian K. Smith, Gareth Wiltshire, Frankie Brown, Haryana M. Dhillon, Mike Osborn , et al. · 2022

Objectives The aim of this study was to explore the experiences of patients with breast, prostate or blood cancer, regarding their (1) engagement with exercise and physical activity during treatment and in the months following standard car…

What Long-Term Care Interventions and Policy Measures Have Been Studied During the Covid-19 Pandemic? Findings from a Rapid Mapping Review of the Scientific Evidence Published During 2020 Open

William Byrd, Maximilian Salcher‐Konrad, Sian K. Smith, Adelina Comas‐Herrera · 2021

Context: Throughout the Covid-19 pandemic, long-term care researchers have aimed to generate evidence rapidly to inform the pandemic response. It is unclear which areas were prioritised during this period of rapid evidence…

Recovering and rebuilding after COVID‐19: What are the best ways to support medical radiation science students? Open

Sian K. Smith, Haryana M. Dhillon · 2021

The Covid-19 pandemic and lockdown periods have impacted Medical Radiation Science (MRS) students professionally and personally. This Editorial provides commentary on two papers that generate discussion on how MRS students can be supported…

A Systematic Review and Meta-Analysis of Patient Decision Aids for Socially Disadvantaged Populations: Update from the International Patient Decision Aid Standards (IPDAS) Open

Renata W. Yen, Jenna Smith, Jaclyn Engel, Danielle Marie Muscat, Sian K. Smith , et al. · 2021

Background The effectiveness of patient decision aids (PtDAs) and other shared decision-making (SDM) interventions for socially disadvantaged populations has not been well studied. Purpose To assess whether PtDAs and other SDM intervention…

Addressing Health Literacy in Patient Decision Aids: An Update from the International Patient Decision Aid Standards Open

Danielle Marie Muscat, Jenna Smith, Olivia Mac, Tamara Cadet, Anik Giguère , et al. · 2021

Background There is increasing recognition of the importance of addressing health literacy in patient decision aid (PtDA) development. Purpose An updated review as part of IPDAS 2.0 examined the extent to which PtDAs are designed to meet t…

Do Personal Stories Make Patient Decision Aids More Effective? An Update from the International Patient Decision Aids Standards Open

Victoria A. Shaffer, Suzanne Brodney, Teresa Gavaruzzi, Yaara Zisman‐Ilani, Sarah Munro , et al. · 2021

Background This article evaluates the evidence for the inclusion of patient narratives in patient decision aids (PtDAs). We define patient narratives as stories, testimonials, or anecdotes that provide illustrative examples of the experien…

Supporting and preparing patients for radiotherapy: Patients’ and radiation therapists’ perspectives on their one‐to‐one consultations Open

Georgia Halkett, Susan Merchant, Sian K. Smith, Moira O’Connor, Michael Jefford , et al. · 2020

RT Prepare was well received by patients and RTs. Practice implications Based on the results of this study and our quantitative findings, implementation of the intervention would be beneficial for both patients and RTs.

“It came from me” – Māori representation in Ramai Te Miha Hayward’s authorship Open

Sian K. Smith · 2020

Addressing the critical question of authorship in historical film, this thesis considers Ramai Te Miha Hayward’s works dealing with Māori and Pākehā intercultural representations. During a time when Māori in film were severely underreprese…

“It came from me” – Māori representation in Ramai Te Miha Hayward’s authorship Open

Sian K. Smith · 2020

Addressing the critical question of authorship in historical film, this thesis considers Ramai Te Miha Hayward’s works dealing with Māori and Pākehā intercultural representations. During a time when Māori in film were severely underreprese…

Study design and protocol for a comprehensive evaluation of a UK massive open online course (MOOC) on quality improvement in healthcare Open

Sian K. Smith, Tricia Woodhead, Anna Burhouse, Christos Vasilakis · 2019

Introduction Massive open online courses (MOOCs) offer a flexible approach to online and distance learning, and are growing in popularity. Several MOOCs are now available, to help learners build on their knowledge in a number of healthcare…

Learners’ experience and perceived impact of a health literacy program in adult basic education: a qualitative study Open

Danielle Marie Muscat, Suzanne Morony, Don Nutbeam, Julie Ayre, Heather L. Shepherd , et al. · 2019

Objectives and importance of the study:Adult literacy programs aim to empower learners to participate more effectively in everyday life. This includes programs with health content embedded in curricula to target health literacy. Adult lear…

Evaluation of an Australian Health Literacy Program Delivered in Adult Education Settings Open

Kirsten McCaffery, Suzanne Morony, Danielle Marie Muscat, Andrew Hayen, Heather L. Shepherd , et al. · 2019

Background: Adult education targeting health literacy (HL) may bring added value in the form of improved health. Objective: This study evaluated the effects of a HL program as part of an adult education curriculum for adults with low liter…

Skills for Shared Decision-Making: Evaluation of a Health Literacy Program for Consumers with Lower Literacy Levels Open

Danielle Marie Muscat, Suzanne Morony, Lyndal Trevena, Andrew Hayen, Heather L. Shepherd , et al. · 2019

Background: Shared decision-making (SDM) has been found to be significantly and positively associated with improved patient outcomes. For an SDM process to occur, patients require functional, communicative, and critical health literacy (HL…

A low literacy targeted talking book about radiation therapy for cancer: development and acceptability Open

Sian K. Smith, Maria Cabrera‐Aguas, Joanne Shaw, Heather L. Shepherd, Diana Naehrig , et al. · 2018

What information is communicated by radiation therapists to patients during education sessions on the first day of treatment? Open

Lena Schnitzler, Sian K. Smith, Heather L. Shepherd, Joanne Shaw, Skye Dong , et al. · 2018

This study examined the content covered by radiation therapists (RTs) during education sessions; the frequency and types of questions asked by patients; and the relationship between patient characteristics and the number of questions asked…

Offering pregnant women different levels of genetic information from prenatal chromosome microarray: a prospective study Open

Jane Halliday, Cecile Muller, Taryn Charles, Fiona Norris, Joanne Kennedy , et al. · 2018

Developing Verbal Health Literacy with Adult Learners Through Training in Shared Decision-Making Open

Danielle Marie Muscat, Heather L. Shepherd, Don Nutbeam, Suzanne Morony, Sian K. Smith , et al. · 2017

Background: Health literacy skills are often assessed in relation to written health materials; however, many important communications are in other formats, especially verbal communication with health care providers. Objective: This qualita…

Improving health literacy through adult basic education in Australia Open

Suzanne Morony, Emma Lamph, Danielle Marie Muscat, Don Nutbeam, Haryana M. Dhillon , et al. · 2017

Adults with low literacy are less empowered to take care of their health, have poorer health outcomes and higher healthcare costs. We facilitated partnerships between adult literacy teachers and community health providers to deliver a heal…

Sociodemographic, psychosocial and clinical factors associated with uptake of genetic counselling for hereditary cancer: a systematic review Open

Amanda Willis, Sian K. Smith, Bettina Meiser, Mandy L. Ballinger, David M. Thomas , et al. · 2016

Evidence suggests that a significant proportion of individuals referred to cancer genetic counselling ( GC ) do not attend, and thus may not be engaged in adequate cancer risk management. We aimed to review the literature to better underst…

(202) Preferences for pain clinical trial characteristics: an ACTTION adaptive choice-based conjoint survey study Open

Sian K. Smith, Jennifer S. Gewandter, Rachel A. Kitt, Penney Cowan, John D. Markman , et al. · 2016

Health literacy and the social determinants of health: a qualitative model from adult learners Open

Gill Rowlands, Adrienne Shaw, Sabrena Jaswal, Sian K. Smith, Trudy Harpham · 2015

Health literacy, ‘the personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health’, is key to improving peoples’ contr…

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