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View article: Learnings From Unboxing the Black Box
Learnings From Unboxing the Black Box Open
View article: Peaking in the Black Box of AI and Its Many Layers
Peaking in the Black Box of AI and Its Many Layers Open
View article: Artificial Intelligence in Biobanking
Artificial Intelligence in Biobanking Open
View article: Biobank-Based Research Employing AI Techniques
Biobank-Based Research Employing AI Techniques Open
View article: Ethical and social issues in prediction of risk of severe mental illness: a scoping review and thematic analysis
Ethical and social issues in prediction of risk of severe mental illness: a scoping review and thematic analysis Open
View article: The role of senior researchers in promoting good science: Obstacles and enablers
The role of senior researchers in promoting good science: Obstacles and enablers Open
This essay examines senior researchers’ professional responsibilities in fostering ethical research practices within their teams, as outlined in the ALLEA European Code of Conduct for Research Integrity. Senior researchers have an importan…
View article: 83<sup>rd</sup> International Scientific Conference on Medicine and Health Sciences of the University of Latvia: Public, Mental Health, and Epidemiology
83<sup>rd</sup> International Scientific Conference on Medicine and Health Sciences of the University of Latvia: Public, Mental Health, and Epidemiology Open
View article: ROSiE Field-specific Guidelines on Responsible Open Science
ROSiE Field-specific Guidelines on Responsible Open Science Open
The Discipline-related Guidelines provide researchers with practical guidance, tailored to their discipline (Health and Life Sciences, Humanities, Natural Sciences, and Social Sciences), to implement responsible open science.
View article: ROSiE General Guidelines on Responsible Open Science
ROSiE General Guidelines on Responsible Open Science Open
The ROSiE guidelines is the Open Science (OS) complement to the European Code of Conduct for Research Integrity. It is an aspirational document that aims to provide guidance on how to conduct Open Science (OS) responsibly in everyday resea…
View article: Unresolved ethical issues of genetic counseling and testing in clinical psychiatry
Unresolved ethical issues of genetic counseling and testing in clinical psychiatry Open
Objective This position article discusses current major ethical and social issues related to genetic counseling and testing in clinical psychiatry (PsyGCT). Methods To address these complex issues in the context of clinical psychiatry rele…
View article: The role of senior researchers in promoting good science: Obstacles and enablers
The role of senior researchers in promoting good science: Obstacles and enablers Open
This essay examines senior researchers’ professional responsibilities in fostering ethical research practices within their teams, as outlined in the ALLEA European Code of Conduct for Research Integrity. Senior researchers have an importan…
View article: Running in the FAMILY: understanding and predicting the intergenerational transmission of mental illness
Running in the FAMILY: understanding and predicting the intergenerational transmission of mental illness Open
View article: Ethical and social reflections on the proposed European Health Data Space
Ethical and social reflections on the proposed European Health Data Space Open
The COVID-19 pandemic demonstrated the benefits of international data sharing. Data sharing enabled the health care policy makers to make decisions based on real-time data, it enabled the tracking of the virus, and importantly it enabled t…
View article: Referee report. For: Engaging publics in biobanking and genetic research governance - a literature review towards informing practice in India [version 2; peer review: 2 approved, 1 approved with reservations]
Referee report. For: Engaging publics in biobanking and genetic research governance - a literature review towards informing practice in India [version 2; peer review: 2 approved, 1 approved with reservations] Open
View article: Comparative Review of National Regulatory Frameworks in the Context of Secondary Use of Data for Research Across Europe
Comparative Review of National Regulatory Frameworks in the Context of Secondary Use of Data for Research Across Europe Open
View article: Citizen Science in Biomedicine: Attitudes, Motivation, and Concerns of the General Public and Scientists in Latvia
Citizen Science in Biomedicine: Attitudes, Motivation, and Concerns of the General Public and Scientists in Latvia Open
Citizen science is research carried out by citizens in cooperation with scientists based on scientifically developed methods. Citizen science makes science accessible to the public and promotes public trust. Since there is scarce evidence …
View article: Beyond 1 Million Genomes (B1MG) D2.2 Policy document for a genome data sharing initiative
Beyond 1 Million Genomes (B1MG) D2.2 Policy document for a genome data sharing initiative Open
<p>In task 2.2, three policy recommendations were developed, based on existing literature, policy documents and guidelines. Care was taken to develop recommendations specifically for use in a large-scale pan-European research infrast…
View article: Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity
Ethical, legal, and social implications in research biobanking: A checklist for navigating complexity Open
Biobanks’ activity is based not only on securing the technology of collecting and storing human biospecimen, but also on preparing formal documentation that will enable its safe use for scientific research. In that context, the issue of in…
View article: Strategic Policy Paper on Responsible Open Science on Responsible Open Science
Strategic Policy Paper on Responsible Open Science on Responsible Open Science Open
This Strategic Policy Paper has been developed with the aim to support policymakers, research institutions (RPOs and RFOs), publishers, researchers, and the global public in developing efficient policies and guidelines, and to enhance the …
View article: Post-identifiability in changing sociotechnological genomic data environments
Post-identifiability in changing sociotechnological genomic data environments Open
Data practices in biomedical research often rely on standards that build on normative assumptions regarding privacy and involve ‘ethics work.’ In an increasingly datafied research environment, identifiability gains a new temporal and spati…
View article: A practical checklist for return of results from genomic research in the European context
A practical checklist for return of results from genomic research in the European context Open
View article: Conceptual and normative framework for tackling the ethical, epistemic, disciplinary and RI-related challenges of advancing OS-practices
Conceptual and normative framework for tackling the ethical, epistemic, disciplinary and RI-related challenges of advancing OS-practices Open
This framework provides guidance by establishing the normative foundations of OS, making explicit the ethical and epistemic issues of OS, raising epistemic/normative questions as guideposts for discussion, providing recommendations to stak…
View article: B1MG D2.1 Report of ELSI Stakeholder Meetings
B1MG D2.1 Report of ELSI Stakeholder Meetings Open
<p>The 1+ Million Genomes (1+MG) initiative aims to enable secure access to genomics and the corresponding clinical data across Europe for better research, personalised healthcare and health policy making. The Beyond 1 Million Genome…
View article: B1MG D2.1 Report of ELSI Stakeholder Meetings
B1MG D2.1 Report of ELSI Stakeholder Meetings Open
The 1+ Million Genomes (1+MG) initiative aims to enable secure access to genomics and the corresponding clinical data across Europe for better research, personalised healthcare and health policy making. The Beyond 1 Million Genomes (B1MG) …
View article: Referee report. For: Respecting values and perspectives in biobanking and genetic research governance: Outcomes of a qualitative study in Bengaluru, India [version 2; peer review: 1 approved, 2 approved with reservations]
Referee report. For: Respecting values and perspectives in biobanking and genetic research governance: Outcomes of a qualitative study in Bengaluru, India [version 2; peer review: 1 approved, 2 approved with reservations] Open
View article: Referee report. For: Ethical issues of involving people with intellectual disabilities in genomic research: a scoping review protocol [version 1; peer review: 1 approved, 1 approved with reservations]
Referee report. For: Ethical issues of involving people with intellectual disabilities in genomic research: a scoping review protocol [version 1; peer review: 1 approved, 1 approved with reservations] Open
View article: Return of results from genomic research: a practical tool
Return of results from genomic research: a practical tool Open
An increasing number of European research projects return, or plan to return, individual genomic research results (IRR) to participants. While data access is a data subject’s right under the GDPR, and many legal and ethical guidelines allo…
View article: B1MG M2.2 Draft policies and best practice guidelines
B1MG M2.2 Draft policies and best practice guidelines Open
B1MG Project Milestone - M2.2 Draft policies and best practice guidelines
View article: Health Humanities in Medicina: The Auxiliary Stance
Health Humanities in Medicina: The Auxiliary Stance Open
At the core of medicine is the idea to help fellow human beings by improving or even restoring their health [...]
View article: Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance
Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance Open
Biobanks act as the custodians for the access to and responsible use of human biological samples and related data that have been generously donated by individuals to serve the public interest and scientific advances in the health research …