Sofia Llahana
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View article: Identifying Knowledge Gaps in Individuals With Primary Adrenal Insufficiency: A Critical Step in Preventing Adrenal Crisis
Identifying Knowledge Gaps in Individuals With Primary Adrenal Insufficiency: A Critical Step in Preventing Adrenal Crisis Open
Objective Adrenal crisis is a potentially fatal complication of primary adrenal insufficiency (PAI) and the leading cause of death in this population. Knowledge and its application are crucial to prevention. This study aimed to assess know…
View article: Barriers and Enablers to Leadership in Advanced Practice Nursing: A Systematic Review
Barriers and Enablers to Leadership in Advanced Practice Nursing: A Systematic Review Open
Aim To explore the barriers and enablers influencing leadership enactment by advanced practice nurses and assess how these have evolved over the past decade. Introduction Nurses in advanced practice roles are well‐positioned to drive healt…
View article: Update on Physical, Psychological, and Quality of Life Management in Klinefelter Syndrome
Update on Physical, Psychological, and Quality of Life Management in Klinefelter Syndrome Open
Context Klinefelter syndrome (KS), most commonly arises from a 47,XXY karyotype. While KS affects around 1 in 450 to 600 male births, an estimated 50% to 75% of cases go undiagnosed. Individuals with KS are at increased risk of metabolic, …
View article: Patient and caregiver experiences with hydrocortisone injections in adrenal crisis: a mixed-methods cross-sectional study
Patient and caregiver experiences with hydrocortisone injections in adrenal crisis: a mixed-methods cross-sectional study Open
Background Adrenal crisis is the leading cause of death in patients with adrenal insufficiency, and prevention requires immediate parenteral hydrocortisone administration. However, most patients do not receive their home emergency hydrocor…
View article: Factors influencing self-management of adrenal crisis in patients with adrenal insufficiency: a qualitative study
Factors influencing self-management of adrenal crisis in patients with adrenal insufficiency: a qualitative study Open
Objective Adrenal crisis is a life-threatening complication that requires urgent administration of parenteral hydrocortisone. Current patient education interventions remain ineffective, contributing to preventable hospitalisations and deat…
View article: Factors influencing the uptake of culturally tailored diabetes self-management education and support programmes among ethnic minority patients with type 2 diabetes: A systematic review
Factors influencing the uptake of culturally tailored diabetes self-management education and support programmes among ethnic minority patients with type 2 diabetes: A systematic review Open
This systematic review highlights the effectiveness of culturally-tailored DSMES programmes in improving health outcomes among ethnic minority groups. It suggests that more research is needed to explore these barriers and develop strategie…
View article: Experiences and perspectives of patients undergoing colorectal cancer surgery: A qualitative study
Experiences and perspectives of patients undergoing colorectal cancer surgery: A qualitative study Open
Findings highlight the need for comprehensive, compassionate communication and tailored support across the patient journey. Recommendations include enhanced patient education on lifestyle impacts, resources to support family and peer netwo…
View article: 12575 Exploring Patient And Parent Perceptions Of Administering Hydrocortisone Injection During Adrenal Crisis: A Cross-Sectional Study
12575 Exploring Patient And Parent Perceptions Of Administering Hydrocortisone Injection During Adrenal Crisis: A Cross-Sectional Study Open
Disclosure: S.V. Llahana: None. J. Anhony: Employee; Self; Solution Medical LLC. Background: Adrenal insufficiency (AI) necessitates lifelong glucocorticoid replacement therapy for most patients, with parenteral hydrocortisone crucial for …
View article: Development and validation of a novel treatment adherence, satisfaction and knowledge questionnaire (TASK-Q) for adult patients with hypothalamic-pituitary disorders
Development and validation of a novel treatment adherence, satisfaction and knowledge questionnaire (TASK-Q) for adult patients with hypothalamic-pituitary disorders Open
Purpose Successful treatment outcomes of adults with hypothalamic-pituitary disorders necessitate the adoption of intricate self-management behaviors, yet current scales for evaluating treatment adherence and satisfaction are inadequate fo…
View article: Service evaluation suggests variation in clinical care provision in adults with congenital adrenal hyperplasia in the UK and Ireland
Service evaluation suggests variation in clinical care provision in adults with congenital adrenal hyperplasia in the UK and Ireland Open
Background Congenital adrenal hyperplasia (CAH) encompasses a rare group of autosomal recessive disorders, characterised by enzymatic defects in steroidogenesis. Heterogeneity in management practices has been observed internationally. The …
View article: An evaluation of the roles of adult and paediatric endocrine nurses in the UK
An evaluation of the roles of adult and paediatric endocrine nurses in the UK Open
Endocrine nursing practice has been changing, with the advent of more autonomous roles, involving nurse led clinics and independent prescribing, with more complex clinical case management. However, recent research highlights the emphasis o…
View article: Using the behaviour change wheel and person-based approach to develop a digital self-management intervention for patients with adrenal insufficiency: the Support AI study protocol
Using the behaviour change wheel and person-based approach to develop a digital self-management intervention for patients with adrenal insufficiency: the Support AI study protocol Open
Introduction Most patients with Adrenal insufficiency (AI) require lifelong glucocorticoid replacement. They need to increase glucocorticoids during physical illness or major stressful situations and require parenteral hydrocortisone in th…
View article: Navigating Disrupted Puberty: Development and Evaluation of a Mobile-Health Transition Passport for Klinefelter Syndrome
Navigating Disrupted Puberty: Development and Evaluation of a Mobile-Health Transition Passport for Klinefelter Syndrome Open
Klinefelter syndrome (KS) is the most common aneuploidy in men and has long-term sequelae on health and wellbeing. KS is a chronic, lifelong condition and adolescents/young adults (AYAs) with KS face challenges in transitioning from pediat…
View article: Association between domains of quality of life and patients with Klinefelter syndrome: a systematic review
Association between domains of quality of life and patients with Klinefelter syndrome: a systematic review Open
Objective Klinefelter syndrome (KS) is the second-most prevalent chromosomal disorder in men, though late diagnosis is very common and 50–75% of men remain undiagnosed. Evidence suggests that men with KS have impaired quality of life (QoL)…
View article: ESE Clinical Practice Guideline on functioning and nonfunctioning pituitary adenomas in pregnancy
ESE Clinical Practice Guideline on functioning and nonfunctioning pituitary adenomas in pregnancy Open
Pregnancies are rare in women with pituitary adenomas, which may relate to hormone excess from secretory subtypes such as prolactinomas or corticotroph adenomas. Decreased fertility may also result from pituitary hormone deficiencies due t…
View article: Low intelligent quotient (IQ) in patients with Klinefelter Syndrome are associated with impaired quality of life: A systematic review with meta-analysis
Low intelligent quotient (IQ) in patients with Klinefelter Syndrome are associated with impaired quality of life: A systematic review with meta-analysis Open
Searchable abstracts of presentations at key conferences in endocrinology ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
View article: Factors Impacting Quality of Life in Patients With Klinefelter Syndrome: A Systematic Review with Narrative Synthesis and Meta-Analysis
Factors Impacting Quality of Life in Patients With Klinefelter Syndrome: A Systematic Review with Narrative Synthesis and Meta-Analysis Open
Objective: To identify how Klinefelter’s Syndrome affects patients’ quality of life (QoL) and to determine which subsections of QoL are affected guided by the WHOQOL100-tool as an overarching framework for QoL. To determine the effects and…
View article: Advanced Practice in Endocrinology Nursing
Advanced Practice in Endocrinology Nursing Open
This book provides a comprehensive guide for nurses practicing in any area of endocrinology and at any level of expertise. Endocrinology Nursing is a fast-developing specialty with nurses performing advanced roles and expanding their pract…
View article: Quality of life for carers of people with type 2 diabetes: A literature review
Quality of life for carers of people with type 2 diabetes: A literature review Open
This scoping literature review explores the impact of type 2 diabetes (T2D) in adults on carers' quality of life (QoL) and emphasises the importance of improving carer support in order to achieve integrated care. The review was conducted i…
View article: Quality of life domains are affected in caregivers of people with type 2 diabetes: results from a literature review
Quality of life domains are affected in caregivers of people with type 2 diabetes: results from a literature review Open
Searchable abstracts of presentations at key conferences in endocrinology ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
View article: Structured nursing educational programs improve quality of life outcomes in patients with Cushing’s syndrome
Structured nursing educational programs improve quality of life outcomes in patients with Cushing’s syndrome Open
Impaired quality of life (QoL) has been reported in patients with Cushing’s syndrome even after biochemical cure, with worse QoL outcomes compared to patients with other pituitary adenomas [1]. A variety of physical, neuropsychosomatic, ps…