Sofie Jakobsson
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View article: Cognitive function and fatigue before and after transsphenoidal surgery in patients with pituitary adenoma: a prospective study
Cognitive function and fatigue before and after transsphenoidal surgery in patients with pituitary adenoma: a prospective study Open
Purpose The aim of this prospective longitudinal study was to evaluate cognitive function and fatigue before and 12 months after transsphenoidal surgery (TSS) for a pituitary adenoma. Methods This study was part of the Gothenburg Pituitary…
View article: Person-centered support for patients with a pituitary tumor following surgery
Person-centered support for patients with a pituitary tumor following surgery Open
Objectives To evaluate whether a person-centered care practice following surgery for pituitary tumors increased psychological well-being. Secondary aims were to study whether person-centered care would lead to better health status, less fa…
View article: Patient Experiences and Prerequisites of Collaboration as Partners in Person‐Centred Care: An Interview Study
Patient Experiences and Prerequisites of Collaboration as Partners in Person‐Centred Care: An Interview Study Open
Aim To explore what characterises communication and collaboration within a patient and professional partnership in outpatient care settings garnered from the experiences of persons living with long‐term conditions. Design A qualitative des…
View article: Patients' experiences of dietary changes during a structured dietary intervention for irritable bowel syndrome
Patients' experiences of dietary changes during a structured dietary intervention for irritable bowel syndrome Open
BACKGROUND: Diet plays an important role in management of gastrointestinal (GI) symptoms in patients with irritable bowel syndrome (IBS). Restrictive diets have gained popularity as treatment for IBS, but no studies have examined the patie…
View article: Patients' experiences of dietary changes during a structured dietary intervention for irritable bowel syndrome
Patients' experiences of dietary changes during a structured dietary intervention for irritable bowel syndrome Open
Background Diet plays an important role in management of gastrointestinal (GI) symptoms in patients with irritable bowel syndrome (IBS). Restrictive diets have gained popularity as treatment for IBS, but no studies have examined the patien…
View article: Headache in patients with non-functioning pituitary adenoma before and after transsphenoidal surgery – a prospective study
Headache in patients with non-functioning pituitary adenoma before and after transsphenoidal surgery – a prospective study Open
Purpose To study the long-term effect of transsphenoidal surgery (TSS) on headache in patients with non-functioning pituitary adenoma (NFPA) and identify factors predicting headache relief following TSS. Methods We evaluated headache in 10…
View article: Symptoms at stroke onset as described by patients: a qualitative study
Symptoms at stroke onset as described by patients: a qualitative study Open
Background Stroke is a common and severe disease that requires prompt care. Symptom expressions as one-sided weakness and speech difficulties are common and included in public stroke campaigns. For some patients stroke can present with sub…
View article: Illness perspectives in patients with primary aldosteronism
Illness perspectives in patients with primary aldosteronism Open
Objective The burden of symptoms and treatment in patients with primary aldosteronism (PA), as well as the patients’ experience of the health care is sparsely studied. The objectives of this study were to describe symptoms considered to be…
View article: The importance of personal documentation for patients living with long‐term illness symptoms after pituitary surgery: A Constructivist Grounded Theory study
The importance of personal documentation for patients living with long‐term illness symptoms after pituitary surgery: A Constructivist Grounded Theory study Open
Introduction Despite surgical treatment, pituitary adenomas often cause long‐term illness symptoms, that profoundly impact patients' quality of life physically, psychologically and socially. Healthcare professionals often fail to recognize…
View article: District nurses' perspectives on health‐promotive and disease‐preventive work at primary health care centres: A qualitative study
District nurses' perspectives on health‐promotive and disease‐preventive work at primary health care centres: A qualitative study Open
Background Health promotion and disease prevention are of utmost importance for sustainable health care and primary health care. District nurses play a key role in primary health care centres, where they meet people suffering from, and/or …
View article: Decision‐Making in Seeking Emergency Care for Stroke Symptoms
Decision‐Making in Seeking Emergency Care for Stroke Symptoms Open
Background Previous studies have shown that rapid treatment for stroke, especially ischemic stroke, reduces mortality and disability. The focus has mainly been on reducing time from arrival at hospital to start of treatment. However, the m…
View article: Maintaining work life under threat of symptoms: a grounded theory study of work life experiences in persons with Irritable Bowel Syndrome
Maintaining work life under threat of symptoms: a grounded theory study of work life experiences in persons with Irritable Bowel Syndrome Open
Background Irritable Bowel Syndrome (IBS) is a highly prevalent functional gastrointestinal disorder. Earlier studies have shown that IBS can limit the ability to perform at work and lead to absenteeism. However, few studies focus on work …
View article: Headache Before and After Endoscopic Transsphenoidal Pituitary Tumor Surgery: A Prospective Study
Headache Before and After Endoscopic Transsphenoidal Pituitary Tumor Surgery: A Prospective Study Open
Objective Headache is a common symptom among patients with pituitary tumors, as it is in the general population. The aim of the study was to investigate headache as a symptom in patients with pituitary tumors before and 6 months after endo…
View article: Circulating brain injury biomarkers increase after endoscopic surgery for pituitary tumors
Circulating brain injury biomarkers increase after endoscopic surgery for pituitary tumors Open
Pituitary tumors and subsequent treatment with endoscopic transsphenoidal surgery (ETSS) may cause injury to suprasellar structures, causing long-term fatigue and neurocognitive impairment. A method to quantify brain injury after ETSS is n…
View article: Measuring patient experiences of person‐centred care: Translation, cultural adaption and qualitative evaluation of item candidates for use in England and Sweden
Measuring patient experiences of person‐centred care: Translation, cultural adaption and qualitative evaluation of item candidates for use in England and Sweden Open
Background To facilitate change for person‐centred care, there is a need to invest in measures to assess if and how healthcare systems are delivering care based on the principles of person‐centred care. This paper describes the first phase…
View article: Sinonasal Symptoms and Self-Reported Health before and after Endoscopic Pituitary Surgery—A Prospective Study
Sinonasal Symptoms and Self-Reported Health before and after Endoscopic Pituitary Surgery—A Prospective Study Open
Objectives Despite the limited invasiveness of endoscopic transsphenoidal surgery (ETSS), some degree of nasal structure destruction is unavoidable. Our objective was to evaluate sinonasal morbidity and self-reported health before and 6 mo…
View article: Finding the Person in Electronic Health Records. A Mixed-Methods Analysis of Person-Centered Content and Language
Finding the Person in Electronic Health Records. A Mixed-Methods Analysis of Person-Centered Content and Language Open
The co-creation and sharing of documentation of person-centered care is important, but challenging in clinical practice. Online access to health records is considered essential to increase patient participation and empowerment in person-ce…
View article: Striving to be in close proximity to the patient: An interpretive descriptive study of nursing practice from the perspectives of clinically experienced registered nurses
Striving to be in close proximity to the patient: An interpretive descriptive study of nursing practice from the perspectives of clinically experienced registered nurses Open
This paper explores essential characteristics of current nursing practice from the perspectives of clinically experienced registered nurses in various fields of health care in Sweden. Nursing practice has been the subject of much debate in…
View article: A national research centre for the evaluation and implementation of person‐centred care: Content from the first interventional studies
A national research centre for the evaluation and implementation of person‐centred care: Content from the first interventional studies Open
Background Person‐centred care (PCC) has been suggested as a potential means to improve the care of patients with chronic and long‐term disorders. In this regard, a model for PCC was developed by the University of Gothenburg Centre for Per…
View article: Self‐rated health over a two‐year period after breast cancer surgery: prospective ratings and retrospective rating by means of a health‐line
Self‐rated health over a two‐year period after breast cancer surgery: prospective ratings and retrospective rating by means of a health‐line Open
Background There are difficulties in clinical assessment of patients' health, and there is a need for evaluating instruments that measures self‐rated health over time and that are based on the patient's own experiences of their health situ…
View article: Implementing a Feasible Exercise Programme in an Allogeneic Haematopoietic Stem Cell Transplantation Setting—Impact on Physical Activity and Fatigue
Implementing a Feasible Exercise Programme in an Allogeneic Haematopoietic Stem Cell Transplantation Setting—Impact on Physical Activity and Fatigue Open
Physical exercise for patients treated with allogeneic haematopoietic stem cell transplantation (allo-HSCT) has shown positive effects on the quality of life and fatigue in experimental trials. However, there is a need for longitudinal eva…
View article: Extended Support Within a Person-Centered Practice After Surgery for Patients With Pituitary Tumors: Protocol for a Quasiexperimental Study
Extended Support Within a Person-Centered Practice After Surgery for Patients With Pituitary Tumors: Protocol for a Quasiexperimental Study Open
Background Patients with pituitary tumors often live with lifelong consequences of their disease. Treatment options include surgery, radiotherapy, and medical therapy. Symptoms associated with the tumor or its treatment affect several area…
View article: Extended Support Within a Person-Centered Practice After Surgery for Patients With Pituitary Tumors: Protocol for a Quasiexperimental Study (Preprint)
Extended Support Within a Person-Centered Practice After Surgery for Patients With Pituitary Tumors: Protocol for a Quasiexperimental Study (Preprint) Open
BACKGROUND Patients with pituitary tumors often live with lifelong consequences of their disease. Treatment options include surgery, radiotherapy, and medical therapy. Symptoms associated with the tumor or its treatment affect several are…
View article: Undergoing repeated colonoscopies – experiences from patients with inflammatory bowel disease
Undergoing repeated colonoscopies – experiences from patients with inflammatory bowel disease Open
Background: Patients with Inflammatory Bowel Disease (IBD) undergo repeated colonoscopies to monitor their lifelong disease.Objective: To describe experiences from repeated colonoscopies in patients with IBD.Methods: Within a qualitative d…
View article: The pre- and postoperative illness trajectory in patients with pituitary tumours
The pre- and postoperative illness trajectory in patients with pituitary tumours Open
Objective Experiences and need of support during surgery and start of replacement therapy in patients with pituitary tumours are highly unknown. This study aimed at exploring patient experiences during pre- and postoperative care and recov…
View article: Fear of graft rejection 1–5 years after lung transplantation—A nationwide cohort study
Fear of graft rejection 1–5 years after lung transplantation—A nationwide cohort study Open
Aim To explore the perceived threat of the risk of graft rejection and its relationship to psychological general well‐being and self‐efficacy 1–5 years after lung transplantation. Design A nationwide, cross‐sectional cohort study as a part…
View article: Validation of Fatigue Impact Scale with various item sets – a Rasch analysis
Validation of Fatigue Impact Scale with various item sets – a Rasch analysis Open
Both the FIS and the Modified scale can be used to measure fatigue albeit requiring some adjustment for DIF. The eight-item D-FIS is more problematic, and its summed score is not valid. Alternative 15- and 6-item versions presented in this…