Stephen D. Marks
YOU?
Author Swipe
View article: <scp>SMARTER</scp> Education for a Global Transplant Workforce
<span>SMARTER</span> Education for a Global Transplant Workforce Open
IPTA created the SMARTER Initiative to address persistent gaps in pediatric transplant education worldwide. Through webinars, podcasts, case discussions, and interactive resources, SMARTER provides trainees and allied professionals with ac…
View article: British Society for Haematology updated guidelines for the diagnosis and management of tumour lysis syndrome in adults and children with haematological malignancies: A focus on patient safety
British Society for Haematology updated guidelines for the diagnosis and management of tumour lysis syndrome in adults and children with haematological malignancies: A focus on patient safety Open
View article: Childhood-onset lupus nephritis: unique aspects and challenges in management
Childhood-onset lupus nephritis: unique aspects and challenges in management Open
View article: Eculizumab withdrawal and monitoring in atypical haemolytic uraemic syndrome (SETS aHUS): a multicentre, open label, prospective, single arm trial
Eculizumab withdrawal and monitoring in atypical haemolytic uraemic syndrome (SETS aHUS): a multicentre, open label, prospective, single arm trial Open
Background: Atypical Haemolytic Uraemic Syndrome is a rare disease, associated with high morbidity and mortality. Eculizumab, a monoclonal complement inhibitor, is an effective treatment but the optimal way to use this high-cost medication…
View article: Demographics and baseline disease characteristics of UK patients within the global aHUS registry
Demographics and baseline disease characteristics of UK patients within the global aHUS registry Open
Atypical haemolytic uraemic syndrome (aHUS) is a rare kidney disease characterized by thrombotic microangiopathy. This study presents the first analysis of UK patients enrolled in the Global aHUS Registry, focusing on patient characteristi…
View article: The unique challenges of childhood-onset systemic lupus erythematosus and lupus nephritis patients: a proposed framework for an individualized transitional care plan
The unique challenges of childhood-onset systemic lupus erythematosus and lupus nephritis patients: a proposed framework for an individualized transitional care plan Open
Childhood-onset systemic lupus erythematosus (cSLE) is a severe lifelong and life-threatening autoimmune disease with multi-organ involvement. Compared to those with adult-onset disease, cSLE patients have more aggressive disease with a hi…
View article: Identifying acute kidney injury in children: comparing electronic alerts with health record data
Identifying acute kidney injury in children: comparing electronic alerts with health record data Open
View article: Access to kidney transplantation and re-transplantation from childhood to adulthood: long-term data from the ERA Registry
Access to kidney transplantation and re-transplantation from childhood to adulthood: long-term data from the ERA Registry Open
Background and hypothesis Knowledge regarding access to first kidney transplantation (KT) and subsequent KT in patients commencing kidney replacement therapy (KRT) in childhood is limited. Methods Using European Renal Association (ERA) Reg…
View article: Acute kidney injury in paediatric kidney transplant recipients
Acute kidney injury in paediatric kidney transplant recipients Open
View article: Combination therapy of favipiravir and nitazoxanide to treat respiratory viral infections in severe T-cell deficient children: A single centre experience
Combination therapy of favipiravir and nitazoxanide to treat respiratory viral infections in severe T-cell deficient children: A single centre experience Open
View article: Method to apply temporal graph analysis on electronic patient record data to explore healthcare professional–patient interaction intensity: a cohort study
Method to apply temporal graph analysis on electronic patient record data to explore healthcare professional–patient interaction intensity: a cohort study Open
Aim Interactions between patients and healthcare professionals (HCP) during hospital admissions are complex and difficult to interrogate using traditional analysis of electronic patient record (EPR) data. The objective of this study was to…
View article: Author Correction: International consensus statement on the diagnosis and management of phaeochromocytoma and paraganglioma in children and adolescents
Author Correction: International consensus statement on the diagnosis and management of phaeochromocytoma and paraganglioma in children and adolescents Open
View article: International consensus statement on the diagnosis and management of phaeochromocytoma and paraganglioma in children and adolescents
International consensus statement on the diagnosis and management of phaeochromocytoma and paraganglioma in children and adolescents Open
View article: The spectrum of co-existing disease in children with established kidney failure using registry and linked electronic health record data
The spectrum of co-existing disease in children with established kidney failure using registry and linked electronic health record data Open
View article: The <scp>IPTA</scp> Nashville consensus conference on <scp>post‐transplant</scp> lymphoproliferative disorders after solid organ transplantation in children: <scp>IV</scp>‐consensus guidelines for the management of <scp>post‐transplant</scp> lymphoproliferative disorders in children and adolescents
The <span>IPTA</span> Nashville consensus conference on <span>post‐transplant</span> lymphoproliferative disorders after solid organ transplantation in children: <span>IV</span>‐consensus guidelines for the management of <span>post‐transplant</span> lymphoproliferative disorders in children and adolescents Open
The International Pediatric Transplant Association convened an expert consensus conference to assess current evidence and develop recommendations for various aspects of care relating to post‐transplant lymphoproliferative disorders (PTLD) …
View article: Protocol for a multicentre prospective exploratory mixed-methods study investigating the modifiable psychosocial variables influencing access to and outcomes after kidney transplantation in children and young people in the UK
Protocol for a multicentre prospective exploratory mixed-methods study investigating the modifiable psychosocial variables influencing access to and outcomes after kidney transplantation in children and young people in the UK Open
Introduction Kidney transplantation is the preferred therapy for children with stage 5 chronic kidney disease (CKD-5). However, there is a wide variation in access to kidney transplantation across the UK for children. This study aims to ex…
View article: Defining remission in childhood-onset lupus: PReS-endorsed consensus definitions by an international task force
Defining remission in childhood-onset lupus: PReS-endorsed consensus definitions by an international task force Open
cSLE definitions of remission have been proposed, maintaining sufficient alignment with the adult-SLE definition to facilitate life-course research.
View article: 50 Converting qualitative data on psychosocial factors influencing access to paediatric kidney transplantation to quantitative output with patient and public involvement
50 Converting qualitative data on psychosocial factors influencing access to paediatric kidney transplantation to quantitative output with patient and public involvement Open
Background Psychosocial factors are known to influence access to kidney transplantation in children with stage 5 Chronic Kidney Disease (CKD) but these factors are poorly understood. An exploratory Mixed Methods (MM) study was designed to …
View article: 13 Successful sequential haploidentical maternal haematopoietic stem cell and kidney transplantation for Schimke immuno-osseous dysplasia
13 Successful sequential haploidentical maternal haematopoietic stem cell and kidney transplantation for Schimke immuno-osseous dysplasia Open
Schimke immuno-osseous dysplasia (SIOD) is a rare autosomal recessive disease caused by homozygous SMARCAL1 gene mutation leading to focal segmental glomerulosclerosis (FSGS), immunodeficiency and disproportionate short stature. The quali…
View article: A pragmatic, open-label, randomized controlled trial of Plasma-Lyte-148 versus standard intravenous fluids in children receiving kidney transplants (PLUTO)
A pragmatic, open-label, randomized controlled trial of Plasma-Lyte-148 versus standard intravenous fluids in children receiving kidney transplants (PLUTO) Open
Acute electrolyte and acid-base imbalance is experienced by many children following kidney transplant. This is partly because doctors give very large volumes of artificial fluids to keep the new kidney working. When severe, fluid imbalance…
View article: The IPTA Nashville Consensus Conference on Post‐Transplant lymphoproliferative disorders after solid organ transplantation in children: III – Consensus guidelines for Epstein‐Barr virus load and other biomarker monitoring
The IPTA Nashville Consensus Conference on Post‐Transplant lymphoproliferative disorders after solid organ transplantation in children: III – Consensus guidelines for Epstein‐Barr virus load and other biomarker monitoring Open
The International Pediatric Transplant Association convened an expert consensus conference to assess current evidence and develop recommendations for various aspects of care relating to post‐transplant lymphoproliferative disorders after s…
View article: The UK kidney donor risk index poorly predicts long-term transplant survival in paediatric kidney transplant recipients
The UK kidney donor risk index poorly predicts long-term transplant survival in paediatric kidney transplant recipients Open
Background The UK kidney offering scheme introduced a kidney donor risk index (UK-KDRI) to improve the utility of deceased-donor kidney allocations. The UK-KDRI was derived using adult donor and recipient data. We assessed this in a paedia…
View article: Epidemiology of childhood acute kidney injury in England using e-alerts
Epidemiology of childhood acute kidney injury in England using e-alerts Open
Background Few studies describe the epidemiology of childhood acute kidney injury (AKI) nationally. Laboratories in England are required to issue electronic (e-)alerts for AKI based on serum creatinine changes. This study describes a natio…
View article: PReS-endorsed international childhood lupus T2T task force definition of childhood lupus low disease activity state (cLLDAS)
PReS-endorsed international childhood lupus T2T task force definition of childhood lupus low disease activity state (cLLDAS) Open
View article: Management and treatment of children, young people and adults with systemic lupus erythematosus: British Society for Rheumatology guideline scope
Management and treatment of children, young people and adults with systemic lupus erythematosus: British Society for Rheumatology guideline scope Open
The objective of this guideline is to provide up-to-date, evidence-based recommendations for the management of SLE that builds upon the existing treatment guideline for adults living with SLE published in 2017. This will incorporate advanc…
View article: Transplant access for children: there is more to be done
Transplant access for children: there is more to be done Open
View article: Vesico-ureteric reflux in children and young people undergoing kidney transplantation
Vesico-ureteric reflux in children and young people undergoing kidney transplantation Open
View article: Renal outcome and plasma methylmalonic acid levels after isolated or combined liver or kidney transplantation in patients with methylmalonic acidemia: A multicenter analysis
Renal outcome and plasma methylmalonic acid levels after isolated or combined liver or kidney transplantation in patients with methylmalonic acidemia: A multicenter analysis Open
View article: A biallelic loss‐of‐function <i>PDIA6</i> variant in a second patient with polycystic kidney disease, infancy‐onset diabetes, and microcephaly
A biallelic loss‐of‐function <i>PDIA6</i> variant in a second patient with polycystic kidney disease, infancy‐onset diabetes, and microcephaly Open
We report a second patient with intrauterine growth retardation, congenital polycystic kidney disease, infancy-onset diabetes, microcephaly, and liver fibrosis caused by a homozygous PDIA6 loss-of-function variant. Our study further define…
View article: Experience of ethical dilemmas among professionals working in pediatric transplantation: An international survey
Experience of ethical dilemmas among professionals working in pediatric transplantation: An international survey Open
Background Professionals working in pediatric transplantation commonly encounter complex ethical dilemmas. Most ethical research in transplantation is related to adult practice. We aimed to gain insight into ethical issues faced by transpl…