Susan L. Mitchell
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View article: Patterns of Oral Anticoagulant Use in Atrial Fibrillation Following Transition to Long‐Term Care
Patterns of Oral Anticoagulant Use in Atrial Fibrillation Following Transition to Long‐Term Care Open
Patterns of oral anticoagulant use for atrial fibrillation following transition to long-term care.
View article: Patient and Caregiver Experiences with Surgical Decision-Making in the Context of Dementia
Patient and Caregiver Experiences with Surgical Decision-Making in the Context of Dementia Open
Objective: To explore patient and caregiver experiences of surgical decision-making for patients living with dementia (PLWD). Summary Background Data: PLWD face heightened risks of poor surgical outcomes. For PLWD, surgical decisions are o…
View article: Withdrawal of Mechanical Ventilation in the ICU
Withdrawal of Mechanical Ventilation in the ICU Open
Nearly all ICU patients undergoing palliative WMV at end-of-life demonstrated distressful symptoms or signs. Anticipatory dosing with opiates prior to WMV may help mitigate their distress.
View article: Study protocol testing feasibility of the Comfort Measures Only Time out (CMOT) to reduce distress during palliative withdrawal of mechanical ventilation
Study protocol testing feasibility of the Comfort Measures Only Time out (CMOT) to reduce distress during palliative withdrawal of mechanical ventilation Open
Clinical trials.gov ( NCT05861323 ); 16 May 2023.
View article: Study protocol testing feasibility of the Comfort Measures Only Time out (CMOT) to reduce distress during palliative withdrawal of mechanical ventilation
Study protocol testing feasibility of the Comfort Measures Only Time out (CMOT) to reduce distress during palliative withdrawal of mechanical ventilation Open
Distress is experienced by more than 30% of patients during palliative withdrawal of mechanical ventilation at the end of life in the intensive care unit. There is a lack of high-quality evidence for specific approaches to risk factor iden…
View article: Outcomes of surgical vs medical treatment for cholecystitis among people living with dementia
Outcomes of surgical vs medical treatment for cholecystitis among people living with dementia Open
Background Cholecystectomy is considered the definitive treatment option for cholecystitis, and patients living with Alzheimer’s Disease and Related Dementias (PLWDs) are at risk for increased mortality, complications, and delirium. Howeve…
View article: Hip Fracture Treatment and Outcomes Among Community-Dwelling People Living With Dementia
Hip Fracture Treatment and Outcomes Among Community-Dwelling People Living With Dementia Open
Importance The decision for surgical vs nonsurgical treatment for hip fracture can be complicated among community-dwelling people living with dementia. Objective To compare outcomes of community-dwelling people living with dementia treated…
View article: The <scp>NIA IMPACT</scp> Collaboratory: History, impact, challenges, and the future of conducting <scp>ePCTs</scp> to improve dementia care
The <span>NIA IMPACT</span> Collaboratory: History, impact, challenges, and the future of conducting <span>ePCTs</span> to improve dementia care Open
In recognition of the 50th anniversary of the National Institute on Aging (NIA), we commemorate the NIA's response to the charge from Congress to identify effective and comprehensive programs to meet the urgent and complex public health ne…
View article: Pragmatic Clinical Trials for Dementia Care: Experience from the First 5 Years of the IMPACT Collaboratory.
Pragmatic Clinical Trials for Dementia Care: Experience from the First 5 Years of the IMPACT Collaboratory. Open
The IMPACT Collaboratory is a national infrastructure and resource dedicated to transforming dementia care in real-world environments for millions of Americans and their care partners, using embedded pragmatic clinical trials. This new app…
View article: Development and External Validation of Models to Predict Need for Nursing Home Level of Care in Community-Dwelling Older Adults With Dementia
Development and External Validation of Models to Predict Need for Nursing Home Level of Care in Community-Dwelling Older Adults With Dementia Open
Importance Most older adults living with dementia ultimately need nursing home level of care (NHLOC). Objective To develop models to predict need for NHLOC among older adults with probable dementia using self-report and proxy reports to ai…
View article: PARTNER ENGAGEMENT STRATEGIES FOR AN EMBEDDED PRAGMATIC CLINICAL TRIAL: A CASE STUDY
PARTNER ENGAGEMENT STRATEGIES FOR AN EMBEDDED PRAGMATIC CLINICAL TRIAL: A CASE STUDY Open
Embedded pragmatic clinical trials (ePCTs) rely on providers, rather than research staff, to implement study protocols. Partnerships need to be carefully managed to ensure a sustainable relationship. This case study describes strategies us…
View article: USING THE ELECTRONIC MEDICAL RECORD OF NURSING HOME RESIDENTS FOR IMPROVED MEASURE OF BEHAVIORAL SYMPTOMS
USING THE ELECTRONIC MEDICAL RECORD OF NURSING HOME RESIDENTS FOR IMPROVED MEASURE OF BEHAVIORAL SYMPTOMS Open
Behavioral symptoms as study outcomes are measured by routinely collected data such as the Minimum Data Set (MDS), the standardized assessment of nursing home (NH) residents. However, MDS under-detects neuropsychiatric symptoms in people w…
View article: Staff and Proxy Views of Multiple Family Member Involvement in Decision Making for Nursing Home Residents With Advanced Dementia
Staff and Proxy Views of Multiple Family Member Involvement in Decision Making for Nursing Home Residents With Advanced Dementia Open
Decision making for nursing home (NH) residents with Alzheimer disease and related dementias often involves input from multiple family members and NH staff to address goals of care at the end of life. Using data from the Assessment of Disp…
View article: Best Practice Recommendations for Integrating Health Equity into Pragmatic Clinical Trials for Dementia Care
Best Practice Recommendations for Integrating Health Equity into Pragmatic Clinical Trials for Dementia Care Open
Context Minoritized populations experience higher rates of dementia and worse health outcomes than non-Hispanic white people, but they are vastly underrepresented in pragmatic clinical trials embedded in health care systems (ePCTs). Little…
View article: Black and white proxy experiences and perceptions that influence advanced dementia care in nursing homes: The <scp>ADVANCE</scp> study
Black and white proxy experiences and perceptions that influence advanced dementia care in nursing homes: The <span>ADVANCE</span> study Open
Background Regional, facility, and racial variability in intensity of care provided to nursing home (NH) residents with advanced dementia is poorly understood. Materials and Methods Assessment of Disparities and Variation for Alzheimer's d…
View article: Health equity considerations in pragmatic trials in Alzheimer's and dementia disease: Results from a methodological review
Health equity considerations in pragmatic trials in Alzheimer's and dementia disease: Results from a methodological review Open
Introduction To improve dementia care delivery for persons across all backgrounds, it is imperative that health equity is integrated into pragmatic trials. Methods We reviewed 62 pragmatic trials of people with dementia published 2014 to 2…
View article: Operationalizing deprescribing as a component of <scp>goal‐concordant</scp> dementia care
Operationalizing deprescribing as a component of <span>goal‐concordant</span> dementia care Open
All authors confirm they have no conflict of interest to disclose.
View article: Ethical analysis of vulnerabilities in cluster randomized trials involving people living with dementia in long‐term care homes
Ethical analysis of vulnerabilities in cluster randomized trials involving people living with dementia in long‐term care homes Open
Cluster randomized trials (CRT) of non‐pharmacological interventions are an important means of improving the quality of care and quality of life of people living with dementia (PLWD) in long‐term care (LTC) homes. PLWD in LTC homes are, ho…
View article: EMBRACING SPIRITUALITY IN THE WORK OF FRONTLINE NURSING HOME STAFF
EMBRACING SPIRITUALITY IN THE WORK OF FRONTLINE NURSING HOME STAFF Open
Good end-of-life care for nursing home (NH) residents and their families provides for spiritual support, however, the role that spirituality plays in the work of NH staff has not been well described. To understand more about spirituality a…
View article: End-Of-Life Care in the Potential Donor after Circulatory Death: A Systematic Review
End-Of-Life Care in the Potential Donor after Circulatory Death: A Systematic Review Open
Background Donation after circulatory death (DCD) is becoming increasingly common, yet little is known about the way potential donors receive end-of-life care. Purpose The aims of this systematic review are to describe the current practice…
View article: Development and External Validation of a Mortality Prediction Model for Community-Dwelling Older Adults With Dementia
Development and External Validation of a Mortality Prediction Model for Community-Dwelling Older Adults With Dementia Open
Importance Estimating mortality risk in older adults with dementia is important for guiding decisions such as cancer screening, treatment of new and chronic medical conditions, and advance care planning. Objective To develop and externally…
View article: The design and conduct of a pragmatic cluster randomized trial of an advance care planning program for nursing home residents with dementia
The design and conduct of a pragmatic cluster randomized trial of an advance care planning program for nursing home residents with dementia Open
Background/Aims A significant number of people with Alzheimer’s disease or related dementia diagnoses will be cared for in nursing homes near the end of life. Advance care planning (ACP), the process of eliciting and documenting patient-ce…