Susan McClement
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View article: Family Members’ Explanatory Models of Cancer Anorexia–Cachexia
Family Members’ Explanatory Models of Cancer Anorexia–Cachexia Open
The experience of bearing witness to the lack of appetite and involuntary weight loss that characterizes cancer anorexia–cachexia syndrome (CACS) is reported to be stressful for family members. Research identifies that family members engag…
View article: Evaluation of the Strengthening a Palliative Approach in Long Term Care (SPA-LTC) programme: a protocol of a cluster randomised control trial
Evaluation of the Strengthening a Palliative Approach in Long Term Care (SPA-LTC) programme: a protocol of a cluster randomised control trial Open
Introduction Despite the high mortality rates in long-term care (LTC) homes, most do not have a formalised palliative programme. Hence, our research team has developed the Strengthening a Palliative Approach in Long Term Care (SPA-LTC) pro…
View article: Neuroticism as a moderator of symptom-related distress and depression in 4 noncancer end-of-life populations
Neuroticism as a moderator of symptom-related distress and depression in 4 noncancer end-of-life populations Open
Objectives Neuroticism is a significant predictor of adverse psychological outcomes in patients with cancer. Less is known about how this relationship manifests in those with noncancer illness at the end-of-life (EOL). The objective of thi…
View article: Toward a holistic understanding of cancer cachexia: Application of the human response to illness model
Toward a holistic understanding of cancer cachexia: Application of the human response to illness model Open
Cachexia is a commonly presenting multidimensional syndrome in individuals living with advanced cancer. Given its prevalence of between 50% and 80%, nurses are going to encounter individuals manifesting ongoing loss of skeletal muscle mass…
View article: Adipose Tissue and Cancer Cachexia: What Nurses Need to Know
Adipose Tissue and Cancer Cachexia: What Nurses Need to Know Open
The purpose of this article is to discuss the different types of adipose tissue involved in cachexia and describe their role in contributing to increased energy expenditure and negative energy balance. Armed with this knowledge, nurses wil…
View article: Development and validation of a patient-reported measure of compassion in healthcare: the Sinclair Compassion Questionnaire (SCQ)
Development and validation of a patient-reported measure of compassion in healthcare: the Sinclair Compassion Questionnaire (SCQ) Open
Objectives Compassion is a key indicator of quality care that is reportedly eroding from patients’ care experience. While the need to assess compassion is recognised, valid and reliable measures are lacking. This study developed and valida…
View article: An Exploration of the Challenges for Oncology Nurses in Providing Hospice Care in Mainland China: A Qualitative Study
An Exploration of the Challenges for Oncology Nurses in Providing Hospice Care in Mainland China: A Qualitative Study Open
It is imperative and critical for the government, health-care institutions, and hospice care providers to clearly understand the challenges that currently exist in providing hospice nursing. Joint efforts are needed to overcome those chall…
View article: More than just a task: intimate care delivery in the nursing home
More than just a task: intimate care delivery in the nursing home Open
Purpose: Intimate care procedures, such as bathing and toileting, are often regarded as simple, humble tasks. However, the provision of such care transforms a very private, personal activity into a social process. Understanding this comple…
View article: Overcoming Recruitment Challenges in Nursing Home Research with Nurses and Health Care Aides
Overcoming Recruitment Challenges in Nursing Home Research with Nurses and Health Care Aides Open
Background Recruiting busy health care providers into research can be challenging. Yet, the success of a research project can hinge on recruitment response rates. This article uses a case study to demonstrate how qualitative researchers cr…
View article: Critical nursing and health care aide behaviors in care of the nursing home resident dying with dementia
Critical nursing and health care aide behaviors in care of the nursing home resident dying with dementia Open
Background With the aging of the population, dying with dementia will become one of the most common ways in which older adults will end their final years of life, particularly for those living in a nursing home. Though individuals living w…
View article: Meanings of ‘centredness’ in long-term care facilities: a scoping review protocol
Meanings of ‘centredness’ in long-term care facilities: a scoping review protocol Open
Introduction There is a growing demand for long-term care services for older adults that embrace a model of care centred on individual recipients of care. In long-term care, models of person, resident and relationship-centred care have bee…
View article: Healthcare providers’ perspectives on perceived barriers and facilitators of compassion: Results from a grounded theory study
Healthcare providers’ perspectives on perceived barriers and facilitators of compassion: Results from a grounded theory study Open
Aims and objectives To explore healthcare provider perspectives and experiences of perceived barriers and facilitators of compassion. Background Compassion is considered a component of quality health care that healthcare providers are incr…
View article: What are healthcare providers’ understandings and experiences of compassion? The healthcare compassion model: a grounded theory study of healthcare providers in Canada
What are healthcare providers’ understandings and experiences of compassion? The healthcare compassion model: a grounded theory study of healthcare providers in Canada Open
Background Healthcare providers are considered the primary conduit of compassion in healthcare. Although most healthcare providers desire to provide compassion, and patients and families expect to receive it, an evidence-based understandin…
View article: Development and evaluation of the Dignity Talk question framework for palliative patients and their families: A mixed-methods study
Development and evaluation of the Dignity Talk question framework for palliative patients and their families: A mixed-methods study Open
Background: Effective patient–family communication can reduce patients’ psychosocial distress and relieve family members’ current suffering and their subsequent grief. However, terminally ill patients and their family members often experie…
View article: Correction: Dignity and Distress towards the End of Life across Four Non-Cancer Populations
Correction: Dignity and Distress towards the End of Life across Four Non-Cancer Populations Open
[This corrects the article DOI: 10.1371/journal.pone.0147607.].
View article: Keep in Touch (KIT): feasibility of using internet-based communication and information technology in palliative care
Keep in Touch (KIT): feasibility of using internet-based communication and information technology in palliative care Open
This study confirmed the feasibility of offering internet-based communication and information technologies on palliative care in-patient units. Patients and families need to be provided appropriate technical support to ensure that the tech…
View article: Sympathy, empathy, and compassion: A grounded theory study of palliative care patients’ understandings, experiences, and preferences
Sympathy, empathy, and compassion: A grounded theory study of palliative care patients’ understandings, experiences, and preferences Open
Background: Compassion is considered an essential element in quality patient care. One of the conceptual challenges in healthcare literature is that compassion is often confused with sympathy and empathy. Studies comparing and contrasting …
View article: Cancer cachexia and its impact on patient dignity: What nurses need to know
Cancer cachexia and its impact on patient dignity: What nurses need to know Open
Noted physician, Sr. William Osler, is credited with saying, "Care more particularly for the individual patient than for the special features of the disease". Osler understood that each patient for whom we care is first and foremost a pers…