Tamara Ownsworth
YOU?
Author Swipe
View article: Supporting self-continuity during the hospital to community transition after acquired brain injury: A qualitative study of priorities, expectations and experiences of rehabilitation
Supporting self-continuity during the hospital to community transition after acquired brain injury: A qualitative study of priorities, expectations and experiences of rehabilitation Open
Rehabilitation during community integration after acquired brain injury (ABI) focuses on supporting individuals to make sense of and manage injury-related changes in the context of occupational engagement. To improve understanding of the r…
View article: Making technology work after acquired brain injury: reasons for use, importance, and psychosocial impact of technology after acquired brain injury
Making technology work after acquired brain injury: reasons for use, importance, and psychosocial impact of technology after acquired brain injury Open
Purpose: To understand how mainstream technology may support rehabilitation needs after acquired brain injury (ABI), this research aimed to investigate reasons, importance, and psychosocial impact of technology use after ABI and explore pe…
View article: Current and bereaved caregivers’ experiences of participating in the adapted Telehealth Making Sense of Brain Tumour program in the context of high-grade glioma
Current and bereaved caregivers’ experiences of participating in the adapted Telehealth Making Sense of Brain Tumour program in the context of high-grade glioma Open
Background The Telehealth Making Sense of Brain Tumour program (Tele-MAST) was adapted for caregivers (cTele-MAST) to address the lack of caregiver-specific psychological support interventions in the context of high-grade glioma. This stud…
View article: What constitutes optimal care coordination for primary brain tumors and how do we assess it in Australia and Aotearoa New Zealand? A Delphi consensus study
What constitutes optimal care coordination for primary brain tumors and how do we assess it in Australia and Aotearoa New Zealand? A Delphi consensus study Open
Background People with primary brain tumors (PBT) and their carers experience diverse issues and functional impairments, which can form barriers to accessing tailored health care. Care coordination (CC) addresses this dual challenge and is…
View article: The impact of referral wait times on high‐risk medication usage in patients with chronic pain: a tertiary pain clinic retrospective chart audit
The impact of referral wait times on high‐risk medication usage in patients with chronic pain: a tertiary pain clinic retrospective chart audit Open
Background Increasing demand for specialist pain clinics for patients with chronic non‐cancer pain has led to longer wait times. The shift towards multimodal analgesia has raised significant safety concerns, particularly in vulnerable popu…
View article: Dance as an Adjunct Therapy for Neurological Rehabilitation – Creative Enrichment for Recovery (DAN-CER): Program Design and Protocol for a Mixed Methods Pilot to Assess Feasibility and Acceptability
Dance as an Adjunct Therapy for Neurological Rehabilitation – Creative Enrichment for Recovery (DAN-CER): Program Design and Protocol for a Mixed Methods Pilot to Assess Feasibility and Acceptability Open
Background Dance is a novel recreational activity that may improve psychosocial outcomes in inpatient neurological rehabilitation; however, adapted dance programs in neurological rehabilitation settings are still emerging. Objective This p…
View article: Nurse-identified needs, recommendations, and referrals during consultations with family carers of patients diagnosed with high-grade glioma
Nurse-identified needs, recommendations, and referrals during consultations with family carers of patients diagnosed with high-grade glioma Open
Background The aim of this manuscript was to describe the frequency and types of nurse-identified needs, recommendations, and referrals delivered to intervention-arm carers of patients with high-grade glioma (HGG) during monthly nurse-led …
View article: Perceived need for and benefits of brain tumour specific psychological support: A longitudinal mixed methods study of the Telehealth Making Sense of Brain Tumour (Tele-MAST) programme
Perceived need for and benefits of brain tumour specific psychological support: A longitudinal mixed methods study of the Telehealth Making Sense of Brain Tumour (Tele-MAST) programme Open
The Making Sense of Brain Tumour programme delivered via videoconferencing (Tele-MAST) demonstrated efficacy for improving mental health and quality of life in people with primary brain tumour (PBT). This study explored the perceived need …
View article: The impact of financial toxicity on quality of life for survivors of primary brain tumour
The impact of financial toxicity on quality of life for survivors of primary brain tumour Open
Purpose Despite the well-known impacts of financial hardship on cancer survivors, financial toxicity experienced in the context of brain tumour has received little attention. This study examined factors related to financial toxicity, and a…
View article: Assistive technology at work: a metasynthesis of the perspectives of people with spinal cord injury/damage
Assistive technology at work: a metasynthesis of the perspectives of people with spinal cord injury/damage Open
Assistive technology (AT) can improve functional and technical capacity in the context of work for people with spinal cord injury/damage (SCI/D). This metasynthesis aimed to explore how AT is used to support the study and employment goals …
View article: Setting me up or holding me back? Perspectives of people with spinal cord injury on rehabilitation supports at inpatient discharge and 3-months post-discharge
Setting me up or holding me back? Perspectives of people with spinal cord injury on rehabilitation supports at inpatient discharge and 3-months post-discharge Open
Individuals' expectations of progress and rehabilitation priorities often change in the first few months post-discharge after SCI. Personalised, responsive and coordinated rehabilitation supports are essential for supporting community adju…
View article: Identifying components of care coordination for primary brain tumor: A scoping review
Identifying components of care coordination for primary brain tumor: A scoping review Open
For people with primary brain tumors (PBT) and their carers, care coordination (CC) offers comprehensive, timely, person-centered care. This review aimed to systematically scope the breadth of literature relevant to approaches to CC for PB…
View article: A randomized controlled trial of a telehealth group cognitive intervention (LaTCH-BRAINS) to improve cognition after primary brain tumor diagnosis
A randomized controlled trial of a telehealth group cognitive intervention (LaTCH-BRAINS) to improve cognition after primary brain tumor diagnosis Open
Background Cognitive changes are common following primary brain tumor (PBT), impacting employment, independence, relationships, and quality of life (QoL). Despite this, tailored cognitive interventions are unavailable within Australia. The…
View article: Dance as an Adjunct Therapy for Neurological Rehabilitation – Creative Enrichment for Recovery (DAN-CER): Program Design and Protocol for a Mixed Methods Pilot to Assess Feasibility and Acceptability (Preprint)
Dance as an Adjunct Therapy for Neurological Rehabilitation – Creative Enrichment for Recovery (DAN-CER): Program Design and Protocol for a Mixed Methods Pilot to Assess Feasibility and Acceptability (Preprint) Open
BACKGROUND Dance is a novel recreational activity that may improve psychosocial outcomes in inpatient neurological rehabilitation; however, adapted dance programs in neurological rehabilitation settings are still emerging. OBJECTIVE Thi…
View article: OS02.6.A COORDINATION OF CARE IN THE CONTEXT OF PRIMARY BRAIN TUMOURS: HEALTHCARE PROFESSIONALS’ EXPLORATION OF THE UNSPOKEN IMPACT AND CLINICAL IMPLICATIONS
OS02.6.A COORDINATION OF CARE IN THE CONTEXT OF PRIMARY BRAIN TUMOURS: HEALTHCARE PROFESSIONALS’ EXPLORATION OF THE UNSPOKEN IMPACT AND CLINICAL IMPLICATIONS Open
BACKGROUND People with primary brain tumours (PwBT) and their families expereince high distress and face challenges navigating the disease, healthcare system, treatment, and/or survivorship. Coordination of care is an approach to achieving…
View article: ‘It was never about me’: A qualitative inquiry into the experiences of psychological support and perceived support needs of family caregivers of people with high-grade glioma
‘It was never about me’: A qualitative inquiry into the experiences of psychological support and perceived support needs of family caregivers of people with high-grade glioma Open
Background: Family caregivers of people with high-grade glioma often report high rates of psychological distress, which has been attributed to the unique aspects of the disease and onerous care demands. Clinical practice guidelines advocat…
View article: Reclaiming Agency in Care Decisions and Barriers From the Perspectives of Individuals With Acquired Brain Injury and Their Family Members
Reclaiming Agency in Care Decisions and Barriers From the Perspectives of Individuals With Acquired Brain Injury and Their Family Members Open
Background The ability to self‐advocate or have a say in one's care is integral to personalised care after acquired brain injury (ABI). This study aimed to understand what constitutes self‐advocacy and associated barriers and facilitators …
View article: A nurse-led intervention for carers of people with high-grade glioma: A case series of carers reporting high distress
A nurse-led intervention for carers of people with high-grade glioma: A case series of carers reporting high distress Open
Background Carers play an important role in supporting patients diagnosed with high-grade glioma (HGG). However, this experience is frequently distressing and many carers require support. Objectives To describe unmet needs of highly distre…
View article: The Australian Traumatic Brain Injury Initiative: Systematic Review and Consensus Process to Determine the Predictive Value of Demographic, Injury Event, and Social Characteristics on Outcomes for People With Moderate-Severe Traumatic Brain Injury
The Australian Traumatic Brain Injury Initiative: Systematic Review and Consensus Process to Determine the Predictive Value of Demographic, Injury Event, and Social Characteristics on Outcomes for People With Moderate-Severe Traumatic Brain Injury Open
The objective of the Australian Traumatic Brain Injury (AUS-TBI) Initiative is to develop a data dictionary to inform data collection and facilitate prediction of outcomes of people who experience moderate-severe TBI in Australia. The aim …
View article: The perspectives of participants with traumatic brain injury on prospective memory rehabilitation incorporating compensatory and metacognitive skills training
The perspectives of participants with traumatic brain injury on prospective memory rehabilitation incorporating compensatory and metacognitive skills training Open
Routine collection of patient feedback on cognitive rehabilitation can provide valuable information to support person-centred implementation of clinical practice guidelines.
View article: Care Transitions for People with Acquired Neurological Disability in the First 12 Months following Inpatient Rehabilitation: Health Service Use and Obstacles
Care Transitions for People with Acquired Neurological Disability in the First 12 Months following Inpatient Rehabilitation: Health Service Use and Obstacles Open
Due to their complex and fluctuating needs requiring multiple transitions of care through different services and systems, the early postdischarge period is one of the vulnerabilities for people with acquired neurological disability. This s…
View article: Perceived vocational support needs and return-to-work outcomes in the first 12-months post-discharge in individuals with acquired brain injury and spinal cord injury: A retrospective cohort study
Perceived vocational support needs and return-to-work outcomes in the first 12-months post-discharge in individuals with acquired brain injury and spinal cord injury: A retrospective cohort study Open
BACKGROUND: Return-to-work (RTW) is often viewed as an important outcome following acquired brain injury (ABI) and spinal cord injury (SCI), although not all individuals have vocational goals and many experience barriers to RTW. OBJECTIVE:…
View article: Lived experience perspectives guiding improvements to the Systematic Tailored Assessment for Responding to Suicidality protocol
Lived experience perspectives guiding improvements to the Systematic Tailored Assessment for Responding to Suicidality protocol Open
Background and aims Suicide risk assessment protocols have traditionally been developed by clinical or research experts in suicidology, with little formal involvement of those with a lived experience of suicide. This study broadly aimed to…
View article: Evaluation of the telehealth making sense of brain tumor psychological support intervention for people with primary brain tumor and their caregivers: A randomized controlled trial
Evaluation of the telehealth making sense of brain tumor psychological support intervention for people with primary brain tumor and their caregivers: A randomized controlled trial Open
Objective This pragmatic randomized control trial aimed to evaluate clinical efficacy of the Making Sense of Brain Tumour program delivered via videoconferencing (Tele‐MAST) for improving mental health and quality of life (QoL) relative to…
View article: Exploring the clinical utility of a brief screening measure of unmet supportive care needs in people with high-grade glioma
Exploring the clinical utility of a brief screening measure of unmet supportive care needs in people with high-grade glioma Open
Background People living with high-grade glioma (HGG) have diverse and complex needs. Screening aims to detect patients with some level of unmet need requiring triaging and further assessment. However, most existing measures of unmet need …
View article: Stigma following acquired brain injury and spinal cord injury: relationship to psychological distress and community integration in the first-year post-discharge
Stigma following acquired brain injury and spinal cord injury: relationship to psychological distress and community integration in the first-year post-discharge Open
Experience of stigma in the first few months post-discharge may negatively impact individuals' community reintegration. The early post-discharge period may be a pivotal time for supporting individuals to explore disability and injury-relat…
View article: Access to psychosocial support for people with brain tumor and family members: Healthcare professional perspectives
Access to psychosocial support for people with brain tumor and family members: Healthcare professional perspectives Open
Objectives Ongoing access to psychosocial support is important to maintain the well‐being of people with brain tumor (PwBT) and their families; yet, there is limited knowledge of psychosocial care access. This qualitative study aimed to de…
View article: Reliability and validity of the telephone-based version of the Montgomery-Asberg depression rating scale for assessing depression in individuals with primary brain tumour
Reliability and validity of the telephone-based version of the Montgomery-Asberg depression rating scale for assessing depression in individuals with primary brain tumour Open
The findings provide psychometric support for the MADRS as a semi-structured interview for assessing depression after brain tumour. Further research investigating the sensitivity and specificity of the MADRS is recommended.
View article: Individuals’ perceptions of health and well-being in the context of stereotactic radiosurgery for benign brain tumour: A longitudinal qualitative investigation
Individuals’ perceptions of health and well-being in the context of stereotactic radiosurgery for benign brain tumour: A longitudinal qualitative investigation Open
Coping and adjustment is highly individualistic in the context of GKSRS. Over time, most individuals were able to make sense of their illness, adjust their mindset and utilize behavioural strategies and support systems to cope with the lon…