Tatsuki Aikyo
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View article: Survey of hereditary angioedema episodes and quality of life impairment through a patient-participatory registry
Survey of hereditary angioedema episodes and quality of life impairment through a patient-participatory registry Open
Hereditary angioedema (HAE) adversely affects patients’ social and daily life significantly, and the disease burden is high. We recruited study participants from a patient-participatory registry, Rare and Undiagnosed Diseases Study (RUDY) …
View article: Enhancing evidence-informed policymaking in medicine and healthcare: stakeholder involvement in the Commons Project for rare diseases in Japan
Enhancing evidence-informed policymaking in medicine and healthcare: stakeholder involvement in the Commons Project for rare diseases in Japan Open
View article: Stakeholder Involvement in the Governance of Human Genome Editing in Japan
Stakeholder Involvement in the Governance of Human Genome Editing in Japan Open
Genome editing is a technology that can accurately and efficiently modify the genome of organisms, including the human genome. Although human genome editing (HGE) has many benefits, it also involves technical risks and ethical, legal, and …