Taylor M. Dattilo
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View article: Experiences of caregivers of children with food allergy during the COVID‐19 pandemic
Experiences of caregivers of children with food allergy during the COVID‐19 pandemic Open
To the Editor,Food allergy (FA) is an immune response to exposure to a given food allergen (e.g., egg, peanuts, and shellfish). In the United States, approximately 4%–8% of children are diagnosed with pediatric FA and the prevalence conti…
View article: The Efficacy of Procedural Support Interventions on Coping and Distress for Children With Newly Diagnosed Leukemia: A Prospective Pilot Study
The Efficacy of Procedural Support Interventions on Coping and Distress for Children With Newly Diagnosed Leukemia: A Prospective Pilot Study Open
Introduction Acute leukemia is the most prevalent pediatric cancer diagnosis in the United States and treatment requires intravenous access weekly or monthly for two to three years. Recurrent medical procedures have been associated with wo…
View article: Adverse Birth Experiences and Parent Adjustment Associated With Atypical Genital Appearance Due to Differences of Sex Development
Adverse Birth Experiences and Parent Adjustment Associated With Atypical Genital Appearance Due to Differences of Sex Development Open
Objective Differences/disorders of sex development (DSDs) are rare, congenital conditions involving discordance between chromosomes, gonads, and phenotypic sex and are often diagnosed in infancy. A key subset of parents of children newly d…
View article: Child‐caregiver cognitive appraisals and caregiver food allergy burden and management
Child‐caregiver cognitive appraisals and caregiver food allergy burden and management Open
The data that support the findings of this study are available from the corresponding author upon reasonable request.
View article: Real-Time Continuous Glucose Monitoring Reduced Costly Diabetes-Related Events in Adolescents and Young Adults despite Lack of Short-Term Reduction in Hemoglobin A1c
Real-Time Continuous Glucose Monitoring Reduced Costly Diabetes-Related Events in Adolescents and Young Adults despite Lack of Short-Term Reduction in Hemoglobin A1c Open
Real-time continuous glucose monitoring (rtCGM) can directly improve patient outcomes, including decreased health care system utilization and associated costs. The purpose of this study was to evaluate the clinical benefits of rtCGM use in…
View article: Parent psychosocial adjustment to inpatient pediatric rehabilitation, and the role of uncertainty and self-care.
Parent psychosocial adjustment to inpatient pediatric rehabilitation, and the role of uncertainty and self-care. Open
More than half of parents endorsed clinical elevations in anxiety, depression, and/or posttraumatic stress. Illness uncertainty and self-care are likely very important clinical topics to discuss with parents. Future research should seek to…
View article: Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia
Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia Open
Objective Illness uncertainty is a salient experience for caregivers of children with disorders/differences of sex development (DSD) presenting with ambiguous genitalia; however, no validated measure of illness uncertainty exists for this …
View article: Neuropsychological and mental health concerns in a multicenter clinical sample of youth with turner syndrome
Neuropsychological and mental health concerns in a multicenter clinical sample of youth with turner syndrome Open
Clinical practice guidelines for individuals with Turner syndrome (TS) recommend screening for neuropsychological concerns (NC) and mental health concerns (MHC). However, current provider screening and referral patterns for NC and MHC are …
View article: Factor analysis of the Stigma Scale—Parent version in pediatric disorders/differences of sex development.
Factor analysis of the Stigma Scale—Parent version in pediatric disorders/differences of sex development. Open
Stigma is a salient experience for both caregivers/parents and individuals with Disorders/Differences of Sex Development (DSD) as evidenced through qualitative and preliminary quantitative reports. However, few validated measures of associ…
View article: Parent–Adolescent Concordance Regarding Fertility Perspectives and Sperm Banking Attempts in Adolescent Males With Cancer
Parent–Adolescent Concordance Regarding Fertility Perspectives and Sperm Banking Attempts in Adolescent Males With Cancer Open
Objective Approximately half of male childhood cancer survivors experience impaired fertility, yet fertility preservation (FP) remains underutilized. Although parent recommendation influences adolescents’ decision-making, parents may be un…
View article: Growing up after childhood cancer: maturity and life satisfaction in young adulthood
Growing up after childhood cancer: maturity and life satisfaction in young adulthood Open
Purpose Young individuals face a variety of developmental tasks as they mature into adulthood. For survivors of childhood cancer, growing up may be more difficult due to their illness and late effects from treatment. This study is the firs…
View article: Family communication about fertility preservation in adolescent males newly diagnosed with cancer
Family communication about fertility preservation in adolescent males newly diagnosed with cancer Open
Background Approximately half of male childhood cancer survivors experience fertility impairment, which can cause psychological distress. Sperm banking remains underutilized among adolescent males with cancer. Parent recommendation influen…
View article: Parent-Child Communication and Reproductive Considerations in Families with Genetic Cancer Predisposition Syndromes: A Systematic Review
Parent-Child Communication and Reproductive Considerations in Families with Genetic Cancer Predisposition Syndromes: A Systematic Review Open
Background: Uptake of genetic testing for heritable conditions is increasingly common. In families with known autosomal dominant genetic cancer predisposition syndromes (CPS), testing youth may reduce uncertainty and provide guidance for f…