Terese Knoppers
YOU?
Author Swipe
View article: “A quality of heart, of presence, and of really caring”: toward affirmative intersex health communication in Canada
“A quality of heart, of presence, and of really caring”: toward affirmative intersex health communication in Canada Open
Introduction This qualitative research study aimed to better understand and help improve the Canadian context for health communication with intersex adults by centering the voices of those directly involved and impacted. Methods We conduct…
View article: “Protection for the public, better use of resources and clearer lines”: Interviews with genetic counselors and their colleagues on the need for regulation in Quebec
“Protection for the public, better use of resources and clearer lines”: Interviews with genetic counselors and their colleagues on the need for regulation in Quebec Open
In Canada, the field of genetic counseling is rapidly evolving alongside the increasing integration of and demand for genetics in healthcare practice. In tandem, there is a growing body of literature advocating for the regulation of geneti…
View article: From code to care: Clinician and researcher perspectives on an optimal therapeutic web portal for acute myeloid leukemia
From code to care: Clinician and researcher perspectives on an optimal therapeutic web portal for acute myeloid leukemia Open
Background Acute myeloid leukemia (AML), a rapidly progressing cancer of the blood and bone marrow, is the most common and fatal type of adult leukemia. Therapeutic web portals have great potential to facilitate AML research advances and i…
View article: Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context
Regulating cancer risk prediction: legal considerations and stakeholder perspectives on the Canadian context Open
View article: Cancer Risk Prediction Regulation Models: Canada Contrasted with the U.S. and the E.U.
Cancer Risk Prediction Regulation Models: Canada Contrasted with the U.S. and the E.U. Open
Risk prediction models hold great promise to reduce the impact of cancer in society through advanced warning of risk and improved preventative modalities. These models are evolving and becoming more complex, increasingly integrating geneti…
View article: Researcher perspectives on ethics considerations in epigenetics: an international survey
Researcher perspectives on ethics considerations in epigenetics: an international survey Open
Over the past decade, bioethicists, legal scholars and social scientists have started to investigate the potential implications of epigenetic research and technologies on medicine and society. There is growing literature discussing the mos…
View article: “The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine
“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine Open
Introduction Making bench to bedside advances in cystic fibrosis (CF) care requires the sustained engagement and trust of people living with CF. However, there is a scarcity of studies exploring their concerns and priorities regarding rese…
View article: The omics of our lives: practices and policies of direct-to-consumer epigenetic and microbiomic testing companies
The omics of our lives: practices and policies of direct-to-consumer epigenetic and microbiomic testing companies Open
While much attention has gone towards ethical, legal, and social implications of direct-to-consumer genetic testing over the past decades, the rise of new forms of consumer omics has largely escaped scrutiny. In this paper, we analyze the …