Explanipedia

Physician Experiences of Substance Use Disorder Management in Pediatric Hospitals: A Qualitative Study of Key Informant Interviews Open

Adam Kronish, Zane MacFarlane, Victoria A. Miller, Maria Christina Herrera · 2025

Adolescent, Parent and Clinician Perspectives on Time Alone in Chronic Illness Visits at a Single Children's Hospital Open

Eleanor Lustig, Alfonso Floyd, Elizabeth Friedrich, Morgan Snyder, Victoria A. Miller · 2025

Background Time alone between adolescents with chronic illnesses and their clinicians may contribute to patient‐centred care and transition readiness within this population. Shifts in the adolescent–parent–clinician relationship underpin t…

From Congress to disadvantaged communities: an analysis of federal water infrastructure investments distributed to Alabama through state revolving funds Open

Victoria A. Miller, Lacey Christian, Mark Ellıott, Christopher S. Lowry, Jillian Maxcy-Brown · 2025

Millions of residents in high-income countries lack access to safely managed drinking water and wastewater services at home. Financing improvements to water-related infrastructure access is primarily dependent upon utility revenue or assis…

Correlates of youth involvement in decision making about growth hormone treatment. Open

Victoria A. Miller, Walter Faig, Morgan Snyder, Elizabeth Friedrich, M. Xiao , et al. · 2025

Parental worry and youth coping may be important targets of intervention when seeking to facilitate youth involvement in GH-related decision making. (PsycInfo Database Record (c) 2025 APA, all rights reserved).

Towards Best Practices for Open Datasets for LLM Training Open

Stefan Baack, Stella Biderman, Kasia Odrozek, Aviya Skowron, Ayah Bdeir , et al. · 2025

Many AI companies are training their large language models (LLMs) on data without the permission of the copyright owners. The permissibility of doing so varies by jurisdiction: in countries like the EU and Japan, this is allowed under cert…

From worries to resilience: a qualitative study of the psychosocial experiences of diverse adolescents and young adults with heart failure and their caregivers Open

Thomas Glenn, Cynthia Smith, Victoria A. Miller, Joanne Wolfe, Elizabeth D. Blume , et al. · 2024

Background and Objectives: Despite advances in treatment and outcomes for paediatric heart failure, both physical and psychosocial comorbidities remain notable among this patient population. We aimed to qualitatively describe the psychosoc…

Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses Open

Connie M. Ulrich, Sarah J. Ratcliffe, Camille J. Hochheimer, Qiuping Zhou, Liming Huang , et al. · 2023

Cancer patients rely less on written features of the informed consent process than on information obtained from the research staff and their own physicians. Research should focus on information and communication strategies that support inf…

Adolescent, Parent, and Clinician Perspectives on Increasing Adolescent Involvement in Decision-Making During Clinic Visits Open

Victoria A. Miller, Andrea Ibarra Toro, Elizabeth Friedrich, Morgan Snyder, Evelyn Stevens , et al. · 2023

Patient and Parent Characteristics Related to Quality of Life and Self-Esteem in Healthy Youth Undergoing Provocative Growth Hormone Testing Open

Adda Grimberg, Elizabeth Friedrich, Walter Faig, Camilia Kamoun, Ettya R. Fremont , et al. · 2023

OBJECTIVE: To examine how height and youth as well as parenting characteristics associate with quality of life (QoL) and self-esteem among healthy youth undergoing growth evaluation with growth hormone (GH) testing. STUDY DESIGN: Healthy y…

Patient and Parent Characteristics Related to Quality of Life and Self-Esteem in Healthy Youth Undergoing Provocative Growth Hormone Testing Open

Adda Grimberg, Elizabeth Friedrich, Walter Faig, Camilia Kamoun, Ettya R. Fremont , et al. · 2023

Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents Open

Melissa K. Cousino, Victoria A. Miller, Cynthia Smith, Heang M. Lim, Sunkyung Yu , et al. · 2023

Importance Despite high disease morbidity and mortality and complex treatment decisions, little is known about the medical and end-of-life decision-making preferences of adolescents and young adults (AYA) with advanced heart disease. AYA d…

Views on Short Stature of Female vs Male Endocrine Pediatric Patients Undergoing Provocative Growth Hormone Testing and Their Parents Open

Camilia Kamoun, Victoria A. Miller, Chris Feudtner, Elizabeth Friedrich, Adda Grimberg · 2023

Youth and parent perceptions of youth decision-making roles regarding evaluation for short stature Open

Ettya R. Fremont, Elizabeth Friedrich, Adda Grimberg, Victoria A. Miller · 2023

Youth decision-making involvement (DMI) in medical treatment associates with greater adherence and feelings of self-efficacy. However, little is known about youth DMI regarding medical evaluation and diagnostic procedures. Using thematic a…

P250: “Don’t paint us all with the same brush”: Information needs in adolescents with differences of sex development Open

Christina Miller, Cindy Buchanan, Susan Howell, Maria G. Vogiatzi, Victoria A. Miller , et al. · 2023

Association of Perceived Benefit or Burden of Research Participation With Participants’ Withdrawal From Cancer Clinical Trials Open

Connie M. Ulrich, Sarah J. Ratcliffe, Qiuping Zhou, Liming Huang, Camille J. Hochheimer , et al. · 2022

Importance Attrition in cancer clinical trials (CCTs) can lead to systematic bias, underpowered analyses, and a loss of scientific knowledge to improve treatments. Little attention has focused on retention, especially the role of perceived…

RF26 | PMON327 Patient and Parent Characteristics Related to Quality of Life and Self-esteem in Healthy Youth Undergoing Provocative GH Testing Open

Adda Grimberg, Elizabeth Friedrich, Walter Faig, Camilia Kamoun, Ettya R. Fremont , et al. · 2022

Background Families often seek medical care for a child's short stature due to concerns about how short stature affects psychosocial function in childhood and projected into adulthood. However, height is a poor predictor of psychosocial ad…

Perceptions of Youth and Parent Decision-Making Roles Regarding Recombinant Human Growth Hormone Treatment Open

Ettya R. Fremont, Elizabeth Friedrich, Chris Feudtner, Adda Grimberg, Victoria A. Miller · 2022

Recombinant human growth hormone (rhGH) is prescribed to youth with growth hormone deficiency (GHD) to support normal growth and ensure healthy physical development, and to youth without GHD to address height concerns. Perceptions of youth…

Management of Adverse Events in Early Clinical Trials by Advanced Practice Providers in the Outpatient Setting: The University of Texas MD Anderson Cancer Center Experience Open

Fedricker Diane Barber, Erick Campbell, Yuko Yamamura, Clover J Patterson, Audrey Hartnett , et al. · 2022

Background: Advanced practice providers (APPs) play important roles in enrolling, educating, and caring for patients in clinical trials. However, much remains unknown about the role of APPs in managing adverse events (AEs) in early (phase …

201. An Exploration of Parent and Youth Roles in Diagnostic Testing for Growth Hormone Deficiency Open

Ettya R. Fremont, Adda Grimberg, Elizabeth Friedrich, Victoria A. Miller · 2022

From Nails to Rails: A Report in the Practical Application of Theoretical Museology Open

Victoria A. Miller · 2021

Theoretical museology is the study of museums, including explorations of their history, role in society, and the activities they engage in for the benefit of the communities that they serve which include curating, public programming, educa…

“I Think Parents Shouldn’t Be Too Pushy”: A Qualitative Exploration of Parent and Youth Perspectives of Youth Decision-Making Involvement in Starting Continuous Glucose Monitoring Open

Ettya R. Fremont, Nathalie Slick, Steven M. Willi, Victoria A. Miller · 2021

Purpose The purpose of this qualitative study was to explore parent and youth perspectives of the decision-making process to start continuous glucose monitoring (CGM). Methods Youth with type 1 diabetes and their parents were assessed with…

Promoting Healthy Childhood Behaviors With Financial Incentives: A Narrative Review of Key Considerations and Design Features for Future Research Open

Chén C. Kenyon, Carina Flaherty, G. Chandler Floyd, Brian P. Jenssen, Victoria A. Miller · 2021

Experiences of Patients After Withdrawal From Cancer Clinical Trials Open

Connie M. Ulrich, Kathleen A. Knafl, Anessa M. Foxwell, Qiuping Zhou, Cynthia P. Paidipati , et al. · 2021

Patient-participants transitioning from a CCT described feeling intense symptoms and emotions and awareness that their life span was short and options seemed to be limited. Communication that includes attention to posttrial needs is needed…

Review of interruptions in a pediatric subspecialty outpatient clinic Open

Tyler Lee, Hinette Rosario, Elizabeth Cifuentes, Jiawei Cui, Emery C. Lin , et al. · 2021

Introduction The objective of this study was to describe interruptions in the pediatric ambulatory setting and to assess their impact on perceived physician communication, patient satisfaction and recall of provided physician instructions.…

Perspectives on Remote Glucose Monitoring in Youth With Type 1 Diabetes Open

Ettya R. Fremont, Victoria A. Miller · 2021

Objective Continuous glucose monitoring (CGM) has become increasingly popular among youth with type 1 diabetes (T1D). Used with CGM, remote monitoring (RM) gives caregivers real-time access to patients’ glucose values. Whereas RM may safeg…

“I Didn't Really Have a Choice”: Qualitative Analysis of Racial-Ethnic Disparities in Diabetes Technology Use Among Young Adults with Type 1 Diabetes Open

Shivani Agarwal, Gladys Crespo-Ramos, Judith A. Long, Victoria A. Miller · 2021

Background: Racial-ethnic disparities in diabetes technology use are well documented in young adults (YA) with type 1 diabetes (T1D), but modifiable targets for intervention still need to be identified. Our objective was to e…

Correlates of Continuous Glucose Monitoring Use Trajectories in Children and Adolescents with Type 1 Diabetes Open

Victoria A. Miller, Rui Xiao, Steven M. Willi · 2021

The goal of this study was to characterize trajectories of continuous glucose monitoring (CGM) use in youth 5-12 weeks after starting CGM and examine what factors differentiate between the trajectory groups. Parent-youth dyads completed as…

Youth Involvement in the Decision to Start CGM Predicts Subsequent CGM Use Open

Victoria A. Miller, Rui Xiao, Nathalie Slick, Chris Feudtner, Steven M. Willi · 2020

OBJECTIVE The ability of continuous glucose monitoring (CGM) to improve diabetes outcomes depends upon consistent use. To identify factors that facilitate long-term use of CGM, this study tested the hypothesis that youth involvement in the…

Assessment of caregiver expectations of physician communication in a pediatric setting Open

Tyler Lee, Julie Cui, Hinette Rosario, Didja Hilmara, Kate Samuelson , et al. · 2020

Tailored Medication Adherence Incentives Using mHealth for Children With High-Risk Asthma (TAICAM): Protocol for a Randomized Controlled Trial Open

Brittney Henderson, Carina Flaherty, G. Chandler Floyd, Jack You, Rui Xiao , et al. · 2020

Background Poor adherence to inhaled corticosteroid medications for children with high-risk asthma is both well documented and poorly understood. It has a disproportionate prevalence and impact on children of minority demographics in urban…

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