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View article: UPBEAT Trial: a randomised feasibility evaluation of a digital system for UPper limB rEhabilitation After sTroke
UPBEAT Trial: a randomised feasibility evaluation of a digital system for UPper limB rEhabilitation After sTroke Open
View article: The hidden workload study protocol: a national mixed-methods analysis of general practice workload and local demographics
The hidden workload study protocol: a national mixed-methods analysis of general practice workload and local demographics Open
Background General practice workload is increasing. Routinely reported NHS data describes workload in relation to numbers of appointments and clinicians delivering appointments. However, “hidden” aspects of general practice workload, such …
View article: Cost‐Effectiveness of a Personalised Self‐Management Intervention for People Living With Long Covid: The LISTEN Randomised Controlled Trial
Cost‐Effectiveness of a Personalised Self‐Management Intervention for People Living With Long Covid: The LISTEN Randomised Controlled Trial Open
Background In the United Kingdom, at least 1.9 million people are estimated to have experienced long Covid, of which 1.3 million have symptoms lasting for more than a year. The Long CovId Personalised Self‐managemenT support EvaluatioN (LI…
View article: Co-designing and testing a management programme with peer support for post-stroke fatigue: Nottingham fatigue after stroke study (NotFAST3)
Co-designing and testing a management programme with peer support for post-stroke fatigue: Nottingham fatigue after stroke study (NotFAST3) Open
Objective To develop and test a novel programme to support post-stroke fatigue management for testing in a future clinical trial. Design Staged approach to development and preliminary testing. Phases 1 and 2: co-design groups held to agree…
View article: Barriers and Enablers for Implementing Self-Management Support for Stroke Survivors: A Mixed-Methods Systematic Review
Barriers and Enablers for Implementing Self-Management Support for Stroke Survivors: A Mixed-Methods Systematic Review Open
Background: Stroke may pose significant challenges to individuals and healthcare systems worldwide, and there is a clear need to understand ways to provide effective self-management support. This systematic review aims to identify barriers…
View article: Supporting someone after their stroke: family members’ views and experiences of self-management
Supporting someone after their stroke: family members’ views and experiences of self-management Open
Family members' conceptualisations of self-management differ from the strategies they use to provide support. A clearer understanding of self-management as a collective process can benefit the development and delivery of efficient self-man…
View article: Personalisation at the Core of Success: Process Evaluation of the LISTEN Randomised Controlled Trial Evaluating a Personalised Self‐Management Support Intervention for People Living With Long Covid
Personalisation at the Core of Success: Process Evaluation of the LISTEN Randomised Controlled Trial Evaluating a Personalised Self‐Management Support Intervention for People Living With Long Covid Open
Background The development and evaluation of rehabilitation interventions designed to support people with Long Covid (LC) remains an important ongoing priority. Many people with LC experience episodic, debilitating symptoms that can reduce…
View article: Creation of EmpowerMe, a co-designed website to promote self-efficacy in survivors of stroke (Preprint)
Creation of EmpowerMe, a co-designed website to promote self-efficacy in survivors of stroke (Preprint) Open
BACKGROUND Digital health innovations are frequently used to support people to manage chronic health conditions. Stroke is common, and people who have survived a stroke and live in the community must learn to manage their health independe…
View article: Do self-management interventions improve self-efficacy and health-related quality of life after stroke? A systematic review
Do self-management interventions improve self-efficacy and health-related quality of life after stroke? A systematic review Open
Introduction: Self-management interventions are recommended after stroke in many international guidelines to improve health-related quality of life (HRQoL). Self-efficacy, a person’s confidence in their abilities, is widely considered to u…
View article: Expanding the pragmatic lens in implementation science: why stakeholder perspectives matter
Expanding the pragmatic lens in implementation science: why stakeholder perspectives matter Open
View article: Developing theoretically grounded strategies to enable and promote patient and public involvement in implementation research studies
Developing theoretically grounded strategies to enable and promote patient and public involvement in implementation research studies Open
Implementation research has emerged as a branch of healthcare research. It studies methods to promote the application of research findings into practice, and, thus, to improve the quality and effectiveness of services and care. Patient and…
View article: Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial): pragmatic, multicentre, parallel group, randomised controlled trial
Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial): pragmatic, multicentre, parallel group, randomised controlled trial Open
Objective To evaluate the effectiveness of Listen, a self-management support intervention, for people living with long covid who were not in hospital. Design Pragmatic, multicentre, parallel group, randomised controlled trial. Setting Twen…
View article: Self-management support program delivered in the sub-acute phase after traumatic injury—study protocol for a pragmatic randomized controlled trial
Self-management support program delivered in the sub-acute phase after traumatic injury—study protocol for a pragmatic randomized controlled trial Open
Background Traumatic injuries, defined as physical injuries with sudden onset, are a major cause of distress and disability, with far-reaching societal consequences. A significant proportion of trauma survivors report persistent symptoms a…
View article: MulTI-domain self-management in older People wiTh OstEoarthritis and multi-morbidities: protocol for the TIPTOE randomised controlled trial
MulTI-domain self-management in older People wiTh OstEoarthritis and multi-morbidities: protocol for the TIPTOE randomised controlled trial Open
View article: Stroke rehabilitation in urban and rural settings in the Philippines: Protocol for an interview and visual elicitation study
Stroke rehabilitation in urban and rural settings in the Philippines: Protocol for an interview and visual elicitation study Open
Introduction There is a lack of community-based rehabilitation for stroke in the Philippines, and research on this topic is limited. Different challenges may be encountered in urban and rural settings. The aim of the Tulong, Ugnayan ng Lin…
View article: The Swedish Stroke Self-Efficacy Questionnaire: translation and cross-cultural adaptation
The Swedish Stroke Self-Efficacy Questionnaire: translation and cross-cultural adaptation Open
View article: Using co‐design methods to develop new personalised support for people living with Long Covid: The ‘LISTEN’ intervention
Using co‐design methods to develop new personalised support for people living with Long Covid: The ‘LISTEN’ intervention Open
Introduction Many Covid‐19 survivors are living with unresolved, relapsing and remitting symptoms and no ‘one size’ of treatment is likely to be effective for everyone. Supported self‐management for the varied symptoms of Long Covid (LC) i…
View article: Expanding the Pragmatic Lens in Implementation Science: Why Stakeholder Perspectives Matter
Expanding the Pragmatic Lens in Implementation Science: Why Stakeholder Perspectives Matter Open
Background Pragmatism is important in implementation science to ensure that implementation methods reflect the practical concerns of the stakeholders and services involved in change. To evaluate the usability of these methods, pragmatic me…
View article: An exploration of the experiences and self-generated strategies used when navigating everyday life with Long Covid
An exploration of the experiences and self-generated strategies used when navigating everyday life with Long Covid Open
Background Around one in ten people who contract Covid-19 report ongoing symptoms or ‘Long Covid’. Without any known interventions to cure the condition, forms of self-management are routinely prescribed by healthcare professionals and des…
View article: Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management
Building Bridges between People with Stroke, Families, and Health Professionals: Development of a Blended Care Program for Self-Management Open
Evidence-informed interventions for stroke self-management support can influence functional capability and social participation. People with stroke should be offered self-management support after hospital discharge. However, in Portugal, t…
View article: A Realist Evaluation of Mechanisms and Contexts for Facilitating the Implementation of Supported Self‐Management in Community Stroke Care (The IMPETUS Study)
A Realist Evaluation of Mechanisms and Contexts for Facilitating the Implementation of Supported Self‐Management in Community Stroke Care (The IMPETUS Study) Open
The past decade has seen a growing recognition of the role of supported self‐management in the provision of long‐term care and support for stroke survivors in primary and community care. However, its implementation and delivery across diff…
View article: “A proof of life” through transition from hospital to home after a stroke in a Portuguese setting - a multi-perspective, longitudinal qualitative study
“A proof of life” through transition from hospital to home after a stroke in a Portuguese setting - a multi-perspective, longitudinal qualitative study Open
Findings show that the manner in which changes after a stroke are approached may be positively transformed to provide strength. As a result of the deeper understanding gained from this study, health professionals may be better placed to ac…
View article: Is a novel digital system for arm and hand rehabilitation suitable for stroke survivors? A qualitative process evaluation of OnTrack
Is a novel digital system for arm and hand rehabilitation suitable for stroke survivors? A qualitative process evaluation of OnTrack Open
Objectives and design National guidelines emphasise the need to enhance arm and hand recovery poststroke. OnTrack is a 12-week package aiming to address this need. Feasibility was evaluated in a single-arm feasibility study (reported separ…
View article: Exploring the issues that influence how people with rare neurological conditions engage in physical activity
Exploring the issues that influence how people with rare neurological conditions engage in physical activity Open
We identified key barriers at environmental/organisational, interpersonal, and intrapersonal levels, highlighting a critical lack of support for people with RNC across UK health services. These factors can be targeted to increase engagemen…
View article: Experiences of acquired brain injury survivors participating in online and hybrid performance arts programmes: an ethnographic study
Experiences of acquired brain injury survivors participating in online and hybrid performance arts programmes: an ethnographic study Open
ABI survivors can engage in online performance art programmes and find participation valuable for their health, well-being, and recovery. More work is needed to explore the generalisability of these findings, especially given digital pover…
View article: Self-management from the perspective of people with stroke – An interview study
Self-management from the perspective of people with stroke – An interview study Open
Individual tailored self-management support could help people with stroke more successfully manage their daily lives post-stroke.
View article: Effectiveness and cost-effectiveness of a personalised self-management intervention for living with long COVID: protocol for the LISTEN randomised controlled trial
Effectiveness and cost-effectiveness of a personalised self-management intervention for living with long COVID: protocol for the LISTEN randomised controlled trial Open
View article: Effectiveness and Cost-Effectiveness of a Personalised Self-management Intervention for living with long COVID: protocol for the LISTEN randomised controlled trial
Effectiveness and Cost-Effectiveness of a Personalised Self-management Intervention for living with long COVID: protocol for the LISTEN randomised controlled trial Open
Background. Individuals living with long COVID experience multiple, interacting and fluctuating symptoms which can have a dramatic impact on daily living. The aim of the Long Covid Personalised Self-managemenT support EvaluatioN (LISTEN) t…
View article: Exploring the issues that influence how people with rare neurological conditions engage in physical activity
Exploring the issues that influence how people with rare neurological conditions engage in physical activity Open
People with rare neurological conditions (RNCs) struggle to achieve regular physical activity (PA). This study explored experiences of people with RNC engaging in PA, their carers, and health care professionals (HCPs) working with them. We…
View article: Defining, conceptualizing and evaluating pragmatic qualities of quantitative instruments measuring implementation determinants and outcomes: a scoping and critical review of the literature and recommendations for future research
Defining, conceptualizing and evaluating pragmatic qualities of quantitative instruments measuring implementation determinants and outcomes: a scoping and critical review of the literature and recommendations for future research Open
The pragmatic (i.e., practical) quality of quantitative implementation measures has received increased attention in the implementation science literature in recent years. Implementation measures that are judged to be pragmatic by implement…