Explanipedia

A community-informed recruitment plan template to increase recruitment of racial and ethnic groups historically excluded and underrepresented in clinical research Open

Jennifer Cunningham‐Erves, Yvonne Joosten, Sheila V. Kusnoor, Stephanie A. Mayers, Jabari Ichimura , et al. · 2022

Design and implementation of a massive open online course on enhancing the recruitment of minorities in clinical trials – Faster Together Open

Sheila V. Kusnoor, Victoria Villalta‐Gil, Margo Michaels, Yvonne Joosten, Tiffany Israel , et al. · 2021

Streamlining the institutional review board process in pragmatic randomized clinical trials: challenges and lessons learned from the Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-Term Effectiveness (ADAPTABLE) trial Open

Guillaume Marquis‐Gravel, Holly R. Robertson, W. Schuyler Jones, Danielle Riley, Daniel E. Ford , et al. · 2021

Patient Stories Can Make a Difference in Patient-Centered Research Design Open

Laurie L. Novak, Sheba George, Kenneth A. Wallston, Yvonne Joosten, Tiffany Israel , et al. · 2020

Amid increasing interest in improving the patient-centeredness of research, new forms of engagement are emerging that enable researchers to get input from community members on research goals, methods, and implementation. This input often i…

Engagement of community stakeholders to develop a framework to guide research dissemination to communities Open

Jennifer Cunningham‐Erves, Tilicia Mayo‐Gamble, Yolanda Vaughn, Jim Hawk, Mike W. Helms , et al. · 2020

Background Dissemination of research findings to past study participants and the community‐at‐large is important. Yet, a standardized process for research dissemination is needed to report results to the community. Objective We developed a…

A REDCap-based model for electronic consent (eConsent): Moving toward a more personalized consent Open

Colleen Lawrence, Leah Dunkel, Mark McEver, Tiffany Israel, Robert J. Taylor , et al. · 2020

Introduction: The updated common rule, for human subjects research, requires that consents “begin with a ‘concise and focused’ presentation of the key information that will most likely help someone make a decision about whether to particip…

Collaboration and Context in the Design of Community-Engaged Research Training Open

Linda Ziegahn, Yvonne Joosten, Lucinda Nevarez, Thelma C. Hurd, Jill Evans , et al. · 2020

Collaboration between academic researchers and community members, clinicians, and organizations is valued at all levels of the program development process in community-engaged health research (CEnR). This descriptive study examined a conve…

Implementation and Evaluation of a Dual-Track Research Training Program for Community Members and Community-Based Organizations Open

Jennifer Cunningham‐Erves, Yvonne Joosten, Charrise P. Hollingsworth, Joshua D. Cockroft, Velma McBride Murry , et al. · 2020

Tailored community research training may result in positive outcomes that can ultimately increase community capacity to be equitable partners in research in support of efforts to improve health outcomes and eliminate health disparities.

Comparing Methods to Make Research More Patient Centered Open

Consuelo H. Wilkins, Sarah Stallings, Sarah Stallings, Victoria Villalta‐Gil, Mckenzie Houston , et al. · 2019

What was the research about?Currently many researchers get input on their research projects from other researchers.But researchers want their work to be more patient centered, or relevant to patients' preferences, needs, and values.To do t…

Community advisory boards: Experiences and common practices of clinical and translational science award programs Open

M. Kathryn Stewart, Beatrice A. Boateng, Yvonne Joosten, Dana Burshell, Hilary O. Broughton , et al. · 2019

Community advisory boards (CABs) are a valuable strategy for engaging and partnering with communities in research. Eighty-nine percent of Clinical and Translational Science Awardees (CTSA) responding to a 2011 survey reported having a CAB.…

A taxonomy of impacts on clinical and translational research from community stakeholder engagement Open

Sarah Stallings, Alaina Boyer, Yvonne Joosten, Laurie L. Novak, Al Richmond , et al. · 2019

Background Community engagement is increasingly recognized as a valuable tool in clinical and translational research; however, the impact of engagement is not fully understood. No standard nomenclature yet exists to clearly define how rese…

Development and validation of the Person-Centeredness of Research Scale Open

Consuelo H. Wilkins, Victoria Villalta‐Gil, Mckenzie M Houston, Yvonne Joosten, Alan Richmond , et al. · 2018

Aim: Person-centeredness shifts the focus of healthcare and research to the needs and priorities of patients and communities, and may improve health outcomes. There are no instruments available, however, with which we can assess the degree…

A Multilevel Approach to Stakeholder Engagement in the Formulation of a Clinical Data Research Network Open

Alaina Boyer, Alecia M. Fair, Yvonne Joosten, Rowena J Dolor, Neely Williams , et al. · 2018

Objectives: To ensure meaningful engagement of stakeholders (patients, clinicians, and communities) in developing the Mid-South Clinical Data Research Network (MS-CDRN), we implemented a comprehensive, multilevel approach: (1) identify bar…

Enhancing translational researchers’ ability to collaborate with community stakeholders: Lessons from the Community Engagement Studio Open

Yvonne Joosten, Tiffany Israel, Amy Head, Yolanda Vaughn, Victoria Villalta Gil , et al. · 2018

Community engagement is considered essential to effectively translate research into practice and is increasingly recognized as a key to successful clinical trial recruitment. Challenges to engaging community stakeholders in research persis…

2215 The value of storytelling in community stakeholder feedback for clinical and translational research Open

Laurie L. Novak, Sheba George, Kenneth A. Wallston, Yolanda Vaughn, Tiffany Israel , et al. · 2018

OBJECTIVES/SPECIFIC AIMS: Community stakeholder engagement along the translational spectrum of biomedical research has been identified as a potentially crucial factor for encouraging participation among underrepresented groups, improving r…

An exploratory study of Clinical and Translational Science Award community-engaged research training programs Open

Linda Ziegahn, Lucinda Nevarez, Thelma C. Hurd, Jill Evans, Yvonne Joosten , et al. · 2018

Background The Clinical and Translational Science Award (CTSA) institutions are increasing development of training programs in community-engaged research (CEnR) to support translational science. Methods This study sampled posters at CTSA n…

Comprehensive strategy for capturing and integrating community input into community research training curricula Open

Jennifer Cunningham‐Erves, Yvonne Joosten, Marino A. Bruce, Jared D. Elzey, Patrick Luther , et al. · 2018

Introduction Community stakeholders often participate in community research training curricula development. There is limited information describing how their input informs curricula. This paper describes input solicitation methods, input r…

Needs, Priorities, and Recommendations for Engaging Underrepresented Populations in Clinical Research: A Community Perspective Open

Jennifer Cunningham‐Erves, Tilicia Mayo‐Gamble, Alecia Malin-Fair, Alaina Boyer, Yvonne Joosten , et al. · 2016

Community Engagement Studios Open

Yvonne Joosten, Tiffany Israel, Neely Williams, Leslie R. Boone, David G. Schlundt , et al. · 2015

The research core will collect data to better understand the impact of CE Studios on research proposal submissions, funding, research outcomes, patient and stakeholder engagement in projects, and dissemination of results. They will also co…

Community‐Engaged Strategies to Promote Relevance of Research Capacity‐Building Efforts Targeting Community Organizations Open

Jennifer Cunningham, Stephania T. Miller, Yvonne Joosten, Jared D. Elzey, Tiffany Israel , et al. · 2015

Objective The study goal is to highlight strategies for promoting relevance of research capacity‐building efforts targeting community organizations (CO)s. Methods Two community partners, representing two COs, were invited to participate in…

Case Study: Community Engagement and Clinical Trial Success: Outreach to African American Women Open

Davalynn A. Johnson, Yvonne Joosten, Consuelo H. Wilkins, Cyndya A. Shibao · 2015

This brief report examines how the use of community engagement principles and approaches enhanced clinical trial recruitment and retention. The Community‐Engaged Research Core (CERC), a CTSA‐supported resource designed to facilitate commun…

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